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  1. 1

    Website updated

    Awesome pictures! It is so exciting to find out about your 2 boys and 1 girl - how perfect!! I love their names too. Take care!
  2. 1

    Get an amnio to know for sure?

    We are in the same position as the last poster - have a 3 year old - she had a sweat test and it came back negative. Our pediatrician recommended going that route first and if the test was borderline or higher we would to the blood test - I guess just because they don't want to freak the little...
  3. 1

    Get an amnio to know for sure?

    We are in the same position as the last poster - have a 3 year old - she had a sweat test and it came back negative. Our pediatrician recommended going that route first and if the test was borderline or higher we would to the blood test - I guess just because they don't want to freak the little...
  4. 1

    HERE WE GO---UPDATED AND SAD :(

    Good luck with the news story - sounds like a good idea. I hope you are able to have a healthy baby soon - I know how much you want one and there is really nothing better in life than children, especially when you have such a happy marriage already.
  5. 1

    echogenic bowel

    Jen, your family has been in my thoughts since you posted about Andrew being born and all the problems you had. I forget, are you in the process of filing a lawsuit for what happened? I know that won't fix anything, but maybe help with the financial burdens. Looking at the pictures of Andrew...
  6. 1

    echogenic bowel

    I went to the doctor this morning and they have agreed to go ahead and do another ultrasound. This time we are just doing a regular ultrasound and not a level 2, but he said if there was a bowel problem that it would definitely show up at this point. We go Thursday morning. My doctor was...
  7. 1

    echogenic bowel

    Okay - here is my question - the last time we had a level 2 ultrasound was back in October and I was 23 weeks pregnant - they didn't see any problems with the bowels - they were clear. Anyway, I am now 37 weeks and I have asked my OBGYN if I should have another ultrasound to check the bowels...
  8. 1

    Just learning

    Congrats on the new baby!! We also have a very healthy beautiful 3 year old and are expecting our 2nd baby at the end of the month!!!! We also found out during this pregancy that my husband and I both carry the same genetic mutation for CF. We decided not to do the amnio, but instead had...
  9. 1

    sweat test vs. blood

    We found out during this pregnancy that my husband and I are both carriers so we are planning on having our baby's cord blood tested when she is born. You can talk with your pediatrician and they can tell you specifically what your OBGYN will need to do (basically put it in the right color test...
  10. 1

    G-Tube, need some help.

    Just reading the posts for the day - Jen, your kids are adorable!!! Gosh, you could never tell that Andrew has anything wrong with him - he looks healthy as can be! Good luck with all your feeding issues. Happy Holidays!
  11. 1

    Update on Ashton

    Sounds like your little guy is quite the trooper! I pray that he is able to be home for his first Christmas. Continue to stay strong for Ashton and each other - I can't imagine how hard it must be to see your baby having to go through all of this - it just isn't fair! We will be sending good...
  12. 1

    Article on Cerebral Palsy for Jen (Andrew's mommy)

    I know this is probably a long way off for you, but I saw this report on our local news and thought is was just really great and thought of you guys with Andrew. Hopefully you will find this article encouraging. Hope things are going well for your family. take care...
  13. 1

    St. Louis Children's Hospital

    I live in the metro St. Louis area and don't have much experience with either hospital, but we just did a sweat test at Cardinal Glennon. I didn't think they had a CF Clinic - thought it was only at Children's Hospital at least that is what my ped. told me and what I have found from searching...
  14. 1

    Allan died this morning.

    So so sorry for your loss. He sounded like such a great guy - a true fighter. Keep your spirits up and know that he is in a better place. Our thoughts and prayers are with you and the rest of your families and friends.
  15. 1

    Not enough sweat.

    Sorry to hear Kaden's sweat test didn't work this time. My daugher was hooked to little electrode things for about 5 minutes or so and then they put this little dial thing on her and wrapped her arm up and we were off to run around for 30-40 minutes. She barely had enough sweat at the end too...
  16. 1

    Pregnancy with CF

    My cousin who is 24 has CF and just had twin boys in August. She did have to go through invitro to get pregnant and had the babies almost 2 months early, but I think she had a very normal pregnancy and is doing good now. I know she did just spend a weekend in the hospital a few weeks ago...
  17. 1

    Ashton's Pic

    Cute picture - congrats grandma! Ashton is a doll and looks like a fighter already! take care.
  18. 1

    New Baby BOY Born 10-23-05

    Congratulations on the birth of your son- Ashton is a cute name. Stay strong and take lots of pictures. We will be thinking about you and keeping you and your family in our prayers. take care and enjoy every precious moment you have with Ashton.
  19. 1

    My Unborn Baby And CF

    You meant 75% chance of having a healthy baby right? If you are both carriers, the baby has a 25% chance of having CF. We found out with this pregnancy that my husband and I are both carriers and decided not to do the amnio because of the risks. We are going to have our baby's cord blood...
  20. 1

    Sweat test Nov. 3 for my two year old

    Welcome Kaden's mom. Just a word of advice - have your kids take a jacket with them for the sweat test - they forgot to tell me that and so we spent almost an hour running around children's hospital trying to make her sweat enough! It is a totally easy test and if I were you - I would have...
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