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Thank you all so much, I am worried about the holidays, and his birthday....Still trying to accept this...need to know there are others who live/lived for their babies, and have to face all the downs of Cf...fears, anxiety, up at night hearing them cough, and there is nothing you can do to stop...

I lost my oldest son Nick on December 13th 2012. It is too much to bear that I am so close to Christmas. The last five years were very hard for him with CF. He was non-compliant, or partially at times as a teen. He was 21 when he died, and his 22nd birthday is January 17th. Because he fought me...

thank you so much for your post. I just lost my son on December 13th 2012...He was 21, and would have been 22 on january17th. It is very hard so far. He went at home. He was very sick and had been struggling to get his lungs free of infection. He was on the bipap a lot of days, but the morning...