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While I wait for the results of the partial genetic panel on my daughter who is .4% in weight and has a fecal elastase of 130, I wonder...she passed her NS (which I believe was just IRT). How often can the IRT be normal but the child still have CF? Does that happen?

The sweat test was negative but the doctor's sent off for genetic testing and still suspects CF or SBD syndrome. We are getting yet another fecal elastase test and yet another abdominal ultrasound (even though the first one was normal). The doctor said that sometimes the sweat test can be...

We have several supplemental policies that we've had for awhile. One is an Allstate Cancer policy that pays per each day in ICU (it's primarily cancer but the ICU waiver pays for any stay). I know CF kids are in the hospital often, but how often are they in ICU? I have to really figure out our...

I know my daughter is likely to have it due to the pancreatic insufficiency, the failure to thrive, and the low vitamin levels. We're just waiting on the sweat test results. If she does, what do we need to do? My husband and I have been talking about ripping out the old carpet in our house and...

How did you know they were malabsorbing? Have they had a fecal elastase?

Hi All: My daughter is 7 months old. She was born around 25% and, since then, has dropped to .4% so she's very Failure to Thrive. She eats and eats but she just doesn't gain weight. She's still in 0-3 month clothes at 7.5 months! The GI just informed us yesterday that fecal elastase results...