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Hi Sarah...nearly same story as we have..my baby girl was diagnosed with df508 & r553x shortly after birth (meconiumileus). We also had no idea we were carriers and her big brother also is healthy (not known if he's carrier). 46,5 % sounds great - tell her to go on like this!!! :-) Stay strong...

My little one catches every infect which is around! Two weeks of antibiotics, 10 days to 3 weeks without and then again... :-/ She's not in kindergarten, but has a big brother who is and so...

When you are healthy I don't think, it's a problem to be in the same room, only a small part of the meds comes into the air and maybe a tiny part to your healthy lungs. Never heard of someone who had problems with this . Our doc didn't warn us about something like that .

Where have you seen it? I don't get...or could it be, that I switched it off already? *verwirrt* :confused: Greetings!

Hello Kaethe108, my little one has same mutations as yours! How is she doing? At the moment we have neb sessions in the morning and in the evening with 2 ml Mucoclear 3% and Salbutamol. Physiotheraphy 1 time a week, Mulitibionta vitamins, K-Vit, vitamin D, Creon for kids, antibiotics when needed...

Can't see it, it's not available im Germany - grrr! :-(

We can't know, but I hope it really hope it'll be sooner!!!

just found that: Study in People with One Copy of the F508del MutationIn addition to the Phase 3 studies in people with two copies of the F508del mutation, Vertex plans to conduct an 8-week exploratory Phase 2 study of VX-809 in combination with ivacaftor in people 12 and older with one copy...

We're in the same situation as you, Kaethe, an answer to that question would be interesting for me, too!!!

This is great! Hope you stay good!!!