Hey guys!
I started my vLog! I have three videos up. My username is thehotcocoagirl and my videos are called Living Life with Cystic Fibrosis: a Vlogumentary, Staying Home, and Feeding tubes and Acting.
All of the g-tubes make it fairly hard to move around on your stomach. They will be hating it for a while, trust me. I don't even remember when I had a smooth stomach. I have the Mickey, and I think it's really nice and easy to use.
I have had my g-tube since I was 3 1/2. I'm 13 now. I don't remember anything, but my mom says they sedated me pretty well, just make sure to ask for the 'Mickey' g-tube because its as small as they come. I've had three different kinds. You'll have to change to tubes about once a year, so you'll...
Living with CF is extremely difficult. I am 13 years old (turning 14 in may!) and I have it (obviously). I am depressed and sometime wonder if its even worth it to live.
I miss school a lot ( I am in eight grade and don't even know how to do the problem 198/34. I am failing in algebra. I cough...
I'm thirteen years old, almost 14. Here's my view on it.
Your son will most likely be going to the doctors every three months to do a pulmonary function test (pft). These tests don't hurt, but they are extremely tiring for cf patients because it requires taking very big breaths and us cf kids...
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