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Hi Traveler620, That is so interesting that you have a child with the same mutations as mine. He is doing really well and hasn't had an episode of pancreatitis in almost a year. He started Kalydeco 7 months ago. I think it is helping him. He told me he can breathe better even though all his...

Thank you to all of you that replied. I truly appreciate your help. My son just turned six 2 weeks ago. Kalydeco was only approved for 6 and older. We have a clinic visit coming up. I will be asking if he can start to take Kalydeco in hopes that it will help with his pancreatitis. He has...

Hi, My son is 6 yrs old. He has R117H 7T mutation also. He has had 2 episodes of pancreatitis last year and 3 since March18 of this year. He has had about 5 ultrasounds and a MRCP that shows no blockages and no gall stones. He is taking Zantac and that is it. The doctors have given me no...

My son is 6 yrs old. He was diagnosed with CF at 3 weeks old. After having two episodes of pancreatitis last year, they re diagnosed him with CFTR related disorder. One of his mutations is R117H 7t and the other mutation is G551D. The R117H is associated with pancreatitis. Since March 18 of...

Yes, staph can turn to MRSA

My drs. Told me not to sterilize mask because it will melt. I tried once and the bubble fish mask did melt. I use the advent sterilizer and sterilize the nebulizer after each use.

Thank you:)

I am new here, but would like some info. My son is 5yrs old and his culture came back with MRSA. He has cultured Staph since he was 1yrs old. I was just wondering if you could let me know more about this bacteria and how it has effected you or your child with CF. Thank you!