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Can anyone tell me your experience with transplant at HUP? I am nervous about the thought of transplant there. I want all the good and the bad experiences.

I am being told that I should get started with prelim transplant testing, however, after seeing friends go through transplants, I am not so sure I even want one. Quality of life after is not great. Chances of survival are poor from what I have seen and the possibility of a 2nd transplant may be...

I am just wondering what others are experiencing at this #. It is starring to get difficult to live a normal life at this point. I have chest tightness, sob, fatigue all the time. Not able work more than 3, 8 hr shifts. Feel like i have a chronic illness for the first time ever. My sister has...

female 38yo 4'10" 96lbs Fev1 46% Double df508, psuedo and mrsa

So it seems to occur with humidity or if exercising. My armpits produce a bad odor that my husband loves to point out! Showering doesn't help, clinical strength deodorants don't help, what to do? I am assuming it is either my diet or pseudomonas and MRSA. I have 2 sisters and one has CF and she...