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That's what I was thinking, make her stakes/drinks. So, you use half & half instead of milk? she does have pediasure, but she's pretty well burnt out on those & couldn't tolerate the scandi shakes. Thanks for the tips ;)

My daughter (11) was hospitalized last yr for the 1st time, for exacerbation. She dropped 15lbs in about 2 months, which put her at 50 lbs. she had no appetite, would get nauseated when trying to eat, vomiting, low lung function 50%, diagnosed with CFRD, all kinds of stuff. It took her a year to...

Yeah....I meant to use COMMON...not normal lol

Yeah....I meant to use COMMON...not normal lol

Yeah....I meant to use COMMON...not normal lol

Is it normal to have blood in the mucus? My daughter has had a cold for the last 3 or 4 days. Yesterday I noticed that when she was blowing her nose, the mucus is grayish & theres blood in it. I know her dr told me way back when that her mucus might be grayish from the pulmozyme, but Im just...

Is it normal to have blood in the mucus? My daughter has had a cold for the last 3 or 4 days. Yesterday I noticed that when she was blowing her nose, the mucus is grayish & theres blood in it. I know her dr told me way back when that her mucus might be grayish from the pulmozyme, but Im just...

Is it normal to have blood in the mucus? My daughter has had a cold for the last 3 or 4 days. Yesterday I noticed that when she was blowing her nose, the mucus is grayish & theres blood in it. I know her dr told me way back when that her mucus might be grayish from the pulmozyme, but Im just...

We had no idea we were carriers until our 3 yr old was diagnosed with CF last oct.

what exactly is CVS??

Hi Everyone! I found out Im pregnant. My husband & I are both carries. Im curious to know how they test the baby while Im pregnant to see if it will have CF. Does anyone know??

HI DEBBIE!!! <img src="i/expressions/face-icon-small-smile.gif" border="0">

Hi Tammy. Thanks for responding. We stayed int he hospital over the course of that 2 weeks. They just kept reducing it manually. The ped. surgeon insisted that he did not want to do surgery, and that it would correct itself. If it happens again, for us to just reduce it ourselves. Thank god it...

Hi everyone! Its been a while since I last posted here. Hope everyone is well. Potty training with my 3 yr old has been slow going but she seems to be catching on. However, yesterday she had a 'normal' poop in the AM. Later she told me she had to go again, a couple times, but each time not...

Well before she was on the creon, she was on the viokase powder & with that her poops were still soft form but dry... now with the creon, theyve been soft form but oily. not AS BAD as before she was on any meds, but still. shes never been constipated (knock on wood) I called the doctor, he...

My daughter has been on this med. for almost 2 weeks now. All week this week shes been complaining about her tummy hurting. Does anyone else(s child) take this & have the same problem?? What medications do you/they take for the enzyme supplement??

This is my daughter, Amaya. She will be 3 on 11/11.

We saw the dr today. he put her on ADEK something or other, iron, the ezyme supplement, and tagament (sp) I told him I was concerned about the prolapse happening again & he said that usualy once they get the enzymes they need, it doesnt happen again. Im feeling a little more positive about...

thanks for the warm welcomes <img src="i/expressions/face-icon-small-smile.gif" border="0">

darn well maybe that person will see this & give me some insight