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    Tips/advice about my daughter

    My daughter (11) was hospitalized last yr for the 1st time, for exacerbation. She dropped 15lbs in about 2 months, which put her at 50 lbs. she had no appetite, would get nauseated when trying to eat, vomiting, low lung function 50%, diagnosed with CFRD, all kinds of stuff. It took her a year to...
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    colds / sinus infections (??)

    Is it normal to have blood in the mucus? My daughter has had a cold for the last 3 or 4 days. Yesterday I noticed that when she was blowing her nose, the mucus is grayish & theres blood in it. I know her dr told me way back when that her mucus might be grayish from the pulmozyme, but Im just...
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    genetic testing while pregnant??

    Hi Everyone! I found out Im pregnant. My husband & I are both carries. Im curious to know how they test the baby while Im pregnant to see if it will have CF. Does anyone know??
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    Potty Training & Prolapse

    Hi everyone! Its been a while since I last posted here. Hope everyone is well. Potty training with my 3 yr old has been slow going but she seems to be catching on. However, yesterday she had a 'normal' poop in the AM. Later she told me she had to go again, a couple times, but each time not...
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    CREON 5

    My daughter has been on this med. for almost 2 weeks now. All week this week shes been complaining about her tummy hurting. Does anyone else(s child) take this & have the same problem?? What medications do you/they take for the enzyme supplement??
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    question about rectal prolapse

    Anyone whose child had this or anyone who has... Im just curious...well worried actually... Does the prolapse happen a lot or is it something that ceases once you start getting treatments for the CF...?? Im soooo paranoid that it will happen to my daughter again. She is so traumatized from...
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