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Im headed back to hospital in Pittsburgh after just getting out two months ago my lung function dropped 15% and really hard to breathe I hope they get me fixed this time I think this is the hardest year i have had in my life Im losing hope in getting any better its just been one decline after...

I was in upmc for a month had pnemonia and mucus plugs and my pfts went down by 20% culured mersa and b cepicea amd phsudo had bronc scope and had a bad reaction to it got a fever a high one that couldn't get down for couple days got confused amd really scared but it broke and they got out 2...

I went to doctors the other day cause I was really not breathing good rember I just got out of hospital bout maybe 2 months so did pft was low at 52 usually my base is 58 so I was worried then he argued with me over having pluracy I told him it was ur staff in the hospital that said I had it...

Im in hospital at wvu might be goin to upmc soon but my pft went down from 58 to 40 in a month and have a temp of 102.5 and really hurts to breathe they r treating me with normal antibiotics until they know what kind of infection I have on iv tobi and meipenum amd zyvox oral my o2 stats suck to...

I cough up blood every other month its not alot and doesnt last but a few hours of streeking then its gone I wondwring why I feel ok and breathing fine no different than usual and is this hirting my lungs like damaging them its been happening for a long time now bout a year told doctors they...

I feel tightness in front of my chest almost all day long and short of breath so went to doctors my pfts where as high as they ever been 59% not high as they should but high for my base is 51% amd he said I sounded good all that so dont know y the pain tightness and shortness of breath all the...

Im tring to do taxes and not feeling good this week either and my cousin who has cf also is is bad shape in hospital anyway im worried bout the tax paper I got from doin clinical trials I made $1100 from trials this year $8000 from part time job and then my social security disabilit money I...

Did anyone has side effects and does it seem to help and what ru using to mix it with doctors sais I could use sterile water or saline hoping it does some good thanks for help

I try my best and it takes all of my time to do treatments and exercise but Im tring to breathe better iwork out 5 days a week with wts. And jump rope and run on treadmill each day but starting 2days ago having streaks of blood and pain in upper chest on both sides is it cause of workin out or...

I been coughing up streaks of blood and my question is y am I coughing up milk white mucus also along with the usual yellow green stuff and streaks of blood dont know what the white stuff is thanks also have upper chest pain

Im 35yrs old and I still not sure when I should go I hate goin in cause of the pain and waste of time and maybe get worse or another bug and I have enough anyway I been streaking blood in mucus for 2 days and today my upper chest is hurting I beem doin prettt good for my overall bad health and...

Went to Pittsburgh for evaluation didn't go good pfts even worse than ever and culturing bad stuff they won't transplant or might depends don't ask what didn't get stright answer on that one but anyone go to Pittsburgh for iv antibiotics this is firat time goin there just wondering how they r...

Went to Pittsburgh for evaluation didn't go good pfts even worse than ever and culturing bad stuff they won't transplant or might depends don't ask what didn't get stright answer on that one but anyone go to Pittsburgh for iv antibiotics this is firat time goin there just wondering how they r...

Anyone on this or have any info on it heard its been helping alot thanks

Whated to know if I have anything to look forward to in my lifetime as far as a total cure or something that stops progression or loss of lung fuction or give us a noramal life im getting older im 34 and im getting to point were I think they will never find anything and its crazt to think that...

I coughed up blood last night not to much but enough and front of chest is hurting blood now comes and goes today i just got out of hospital from clean out bout a month ago should i go back or try to do oral stuff I'm pretty scared all veins r gone and it kills me when they try a millon tis and...