Search results

  1. J

    Advice on talking to father of the importance of getting treatments done.

    Cheryl, thanks for the advice. I thought about contacting the military. And u r so right about being proactive, that is what I believe too, I was just trying too help him understand, but instead of hearing what I'm saying, he reverts back to me being spiteful of him. I'm just so sick of his high...
  2. J

    i wish he would understand

    Well it been a long 24 hours her father won't call but he likes to th message, and I was hoping he would understand my concern about him not getting treatments and meds taken, but nope. As usual it's me keeping her from him.in the past eight years she has missed one visit, last Xmas she wasn't...
  3. J

    Something a relative said to me at a wedding -- cried myself to sleep

    Take it all in stride, I'm sure he meant no harm, and your reaction is completely normal. I don't have CF my daughter does and that comment would have made me cry. Maybe next be more forthcoming with information. Reply with a hell yeah, I have a great CF team, I'm on top of all my meds, and I'm...
  4. J

    Liver issues, continued...

    Well, maybe tomorrow, fingers crossed everything goes well
  5. J

    That didn't last long.

    Bummer, that sucks. But hopefully this procedure can done and you can get home
  6. J

    Advice on talking to father of the importance of getting treatments done.

    pat and you advice worth every penny.
  7. J

    Advice on talking to father of the importance of getting treatments done.

    lol, thanks pat. Our custody situation is a bit different. There are no set days, he's in the military and custody says "as agreed upon" He lives in another state, thank god. I know she only visits a few times a years, but in my opinion missing treatments like she does a few times a year will...
  8. J

    Gettin' out today!

    Woo Hoo it will be nice to sleep in your bed. Go celebrate with your favorite treats.
  9. J

    Liver issues, continued...

    I'm so happy to hear that, you just put a huge smile on my face, and its been a rough day. Things like this make me so happy. You and Becky should go and have a high calorie meal and a huge dessert, you deserve it. Please stay in touch, I'm a great listener and supporter, here no matter what.
  10. J

    Liver issues, continued...

    Pat, so glad to hear that your typing from the hospital. I am sure it's not easy, and I am praying for you, I pray for all the CFers. Everyone holds a special place in my heart. I may not have CF, but having a daughter with it really puts life into perspective. Now only if her father would view...
  11. J

    Advice on talking to father of the importance of getting treatments done.

    Well, I was hoping to wait to use that one. I already spoke with her clinic about the situation, which they were not happy about, and the social worker if needed we can use medical neglect. I really want to wait for that, I'm hoping he will just realize he is in the wrong and start to do a...
  12. J

    Advice on talking to father of the importance of getting treatments done.

    He was involved at first when we lived in the same city, but even back then he still had a hard time with it, which is normal, but I think he lets that interfere with ability. Every time we would leave a clinic he would say negative things about her CF team, how they talked down to him and so...
  13. J

    Liver issues, continued...

    Sweetheart, you need to tell you medical team, I know hospitals are no fun, but you can't get better if you don't get help. Take care of yourself you only get one.
  14. J

    Advice on talking to father of the importance of getting treatments done.

    Hi all, I have a 12 yr old daughter with CF, her father lives in another state and she goes to visit about twice a year. Here is my situation, the past few times she has visited him she has come home with way to much medication, which tells me that treatments do not get done on a daily basis...
  15. J

    Advice needed

    Hi Maya, I also have a 12 yr old with CF, although Maddy doesn't have the health issues your daughter does, but I can sympathize with getting treatments done. We just had a clinic a few weeks ago, and I called the nurses before the clinic to ask them if they could talk with Maddy about the...
Top