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H guys. I was wondering if any of you have had a Pleuredesis procedure. My son recently had one, and unfortunately struggles with communication. He keeps saying when he breathes it feels like when you rub your hand over a balloon. He says he can feel his lung. I've tried asking him...

It so funny that someone asked a similar question in a separate thread. Just curious if anyone out here sees their cf doc at the falk clinic in Pittsburgh, PA. My son is 21, turning 22 soon and his clinic is going to begin the transition to adult care. Hoping there are others out there to...

Hi guys. My son is n the hospital with his second spontaneous pneumothorax n the left side. He woke up with chest pain and tightness. After a chest x Ray at a satellite place he was taken by ambulance to his hospital. It is over 50 percent collapsed. He will be having surgery in the am that...

Hi guys. Been awhile since I posted but was Just wondering if there is any need for concern when child cultures pseudomonas fluorescens? It's the first time and I called the clinic but sometimes they are slow to get back to you. Thank you so much Jshet22

Hi guys. Well after having pft drops since December and finishing a two month round of bactruim, my son is going in on Monday to start IV antibiotics. He has a port and the plan is for him to stay inpatient for 2 days to be sure he's not having any side effects and go home and continue them...

Anyone getting IV Pamidronate for osteoporosis or low bone density? If so, have you needed a tooth extraction or do you know how risky it is to have one? My son is having severe pain from a wisdom tooth and the new dental practice we are at do not want to touch it because of him being on the...

Hi guys, quick question. Any of you or your children become extremely exhausted after spending an afternoon outside when it's warm? My son seems to get this way after we come in and it continues the entire next day with tiredness and even bloodshot eyes. He isn't even doing anything active...

Hi guys. I feel like I've had a lot of questions lately, but you guys are always so helpful, so here goes. My son has been having recurring vomiting and diarrhea for the last year, but has gotten worse the last 6 months. His gi says its cyclic vomiting syndrome and he will be starting yet...

This probably isn't cf related, but what do I know, lol. Since December my son has had 5 bouts of diarrhea, vomiting, and stomach pain. I'm just having a hard time believing this is another stomach virus. Every episode has been the same. He wakes up through the night like around 4 am with...

Hi guys. Hope it's ok to post this here. If not I'll take it down. I am trying to win a meet and greet with the band Linkin Park for my son Jacob who has cf and also autism. He loves music and this is his favorite band. He wants to get his guitar signed. If any of you could take a...

Hey guys, just a quick question. Is distal intestional obstruction syndrome, (DIOS), seen only in people with cf? Thank you so much.

My son has been having drops in pft's for a while now. He has not been completely well since mid December. He had a clinc visit 2 weeks ago and decided it was time to try Tobi. At clinic he barely was coughing (geting over a chest infection), but did have a pretty good drop in function. An...

I ask this question after a relatives friend asked me. Her child had a sweat test and the results were a 58 and 73. She asked if this is considered positive since it's Friday and hasn't spoken to the doctor. I said I honestly don't know and didn't offer any opinion. I was just wondering what...

Hi everyone. I haven't been on here in awhile and looked at archive posts to see if I could find an answer and didn't see anything. My son is 20 with cf, autism and a ton of other things. Since September his pft's have been dropping. He had a slight increase in December, but they are down to...

I had my son at his neuro. Doc on Monday, and was discussing his upcoming appointment with a geneticist because of all of his other diagnoses and odd symptoms unrelated to his cf. she said it was funny I brought that up because tomorrow, (meaning Tuesday), they had someone coming to discuss the...