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I want to thank you all for your input. I have let my SIL know about this site and told her you would be a wonderful support system for her and her family. Right now they are having to decide about a lobectomy for her daughter.

I did a search and it appears that very few people have had a lobectomy - is it not common? For those of you who have had one, what research did you do or have available that helped you make your decision? Are you glad you had the lobectomy? Is there anyone with CF who decided not to have it...

My niece has CF and has been hospitalized again. Her parents are feeling a lot of pressure, especially mom to quit her job and keep her at home to avoid germs. I'm of the opinion that having her live a as normal life as possible is best and her mom should not feel guilty for working. Her mom...