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  1. J

    PLEASE READ - I really need help

    Hi - Im in seattle and go to the CF clinic at the UW. Let me help you out. I was just in clinic on monday. CF clinic is only Monday morning and sometimes can be hard to get into. And when you call Medical Specialties to set an appt they will just give you one despite not knowing the urgency...
  2. J

    PLEASE READ - I really need help

    Hi - Im in seattle and go to the CF clinic at the UW. Let me help you out. I was just in clinic on monday. CF clinic is only Monday morning and sometimes can be hard to get into. And when you call Medical Specialties to set an appt they will just give you one despite not knowing the urgency...
  3. J

    Wanting to have a baby

    Thank you so much for your insight. I was lucky to be born with a mild case of CF and up until last year just only had to maintain a healthy diet and exercise. It unfortunately caught up to me. But, I have determination to get back to where I was. I 100% believe that besides physically doing...
  4. J

    Wanting to have a baby

    Thank you so much for your insight. I was lucky to be born with a mild case of CF and up until last year just only had to maintain a healthy diet and exercise. It unfortunately caught up to me. But, I have determination to get back to where I was. I 100% believe that besides physically doing...
  5. J

    Wanting to have a baby

    Thank you so much for your insight. I was lucky to be born with a mild case of CF and up until last year just only had to maintain a healthy diet and exercise. It unfortunately caught up to me. But, I have determination to get back to where I was. I 100% believe that besides physically doing...
  6. J

    Wanting to have a baby

    HI, you mentioned that you and your doctor worked to get your PFT's up? Can you tell us what specifically you did? I was in the 98% up until a year ago and had a major infection that led to my first IV antibiotics. Unfortunately, I am stuck around 65% and have been trying to regain to where I...
  7. J

    Wanting to have a baby

    HI, you mentioned that you and your doctor worked to get your PFT's up? Can you tell us what specifically you did? I was in the 98% up until a year ago and had a major infection that led to my first IV antibiotics. Unfortunately, I am stuck around 65% and have been trying to regain to where I...
  8. J

    Wanting to have a baby

    HI, you mentioned that you and your doctor worked to get your PFT's up? Can you tell us what specifically you did? I was in the 98% up until a year ago and had a major infection that led to my first IV antibiotics. Unfortunately, I am stuck around 65% and have been trying to regain to where I...
  9. J

    Has anyone had sinus surgery due to polyps?

    I had the surgery when I was 15, and 12 years later I have 2 small polyps. I do saline irrigation and take Beconase (steroid nose spray) and it has been successful for me. Good luck Jen 27w/cf
  10. J

    Has anyone had sinus surgery due to polyps?

    I had the surgery when I was 15, and 12 years later I have 2 small polyps. I do saline irrigation and take Beconase (steroid nose spray) and it has been successful for me. Good luck Jen 27w/cf
  11. J

    Has anyone had sinus surgery due to polyps?

    I had the surgery when I was 15, and 12 years later I have 2 small polyps. I do saline irrigation and take Beconase (steroid nose spray) and it has been successful for me. Good luck Jen 27w/cf
  12. J

    Pulmozyme-dornase alfa recombinant

    I was given Pulmozyme during the initial studies, about 13 years ago. I knew I hadn't received a placebo because I noticed a difference within a week of taking the mysterious med they had called DNAse. I went off the med through my teens and now 27 started again about 6 months ago. This time...
  13. J

    Pulmozyme-dornase alfa recombinant

    I was given Pulmozyme during the initial studies, about 13 years ago. I knew I hadn't received a placebo because I noticed a difference within a week of taking the mysterious med they had called DNAse. I went off the med through my teens and now 27 started again about 6 months ago. This time...
  14. J

    Pulmozyme-dornase alfa recombinant

    I was given Pulmozyme during the initial studies, about 13 years ago. I knew I hadn't received a placebo because I noticed a difference within a week of taking the mysterious med they had called DNAse. I went off the med through my teens and now 27 started again about 6 months ago. This time...
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