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I feel like I haven't seen much from her lately, but maybe I just don't check this thing often enough. Hope you are well, Jennifer!

Has anyone heard from Roshelle? Thinking of you!

So I have some rather exciting news. A researcher at Brigham and Women's Hospital called and Mike may be a lifesaver! Let me back up. As you may recall, after being listed in Boston for a year, we went to Cleveland so Mike could get dual listed there. They had some additional testing and...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.caringbridge.org/visit/kaylagilbert">http://www.caringbridge.org/visit/kaylagilbert</a>

This was posted in the transplant section, but I wanted to make sure everyone knows. Kayla (Kaylamarie on here) got her lungs the other day and is doing great. Her mom posted in the transplant section. I talked to her friend Nicole and she is up and walking and from what I've heard...

I think I heard that Vicki was called in although maybe that was a dream? Has anyone heard anything?

Thank you, Emily for posting. I haven't been able to do anything in the past few days and I don't know how I am functioning now. I want everyone to know that I don't know anything about the accident, I did not watch the news or let anyone tell me any specifics. All I know is that he went...

It has been one month since Mike's transplant. This weekend we went for a 3 mile walk with our dog, and two (TWO) five-mile bike rides. he did not get out of breath!!!! Today he goes for his first bronch/biopsy to make sure everything is okay. He says this weekend alone has made it all worth...

I posted some pictures of Mike's old and new lungs on his website. Be careful if you don't have a strong stomach. I thought it was fascinating!! www.caringbridge.org/mikegroff

Mike is 29 today!!! Happy birthday, my love!!!

We got called to boston at 6:30 this morning! We are still here and things look like they will happen! The lungs will be here in an hour!! Wich us luck! This is our sixth call!! I will update soon!!!

Mike asked me to write this as he is lying on the couch very uncomfortable. Lately he has been in a lot of pain and the only thing that seems to help the tight chest feeling is Tylenol # 3 (with codeine). He takes 2 once a day in the evening when he starts to feel really tight. They ease the...

We got the call for lungs!! We will be heading to Boston soon. All we know is that they are coming up from Florida. Please pray that this is not another false alarm. We are ready!! Thanks in advance for all your nice thoughts and prayers!!

Has anyone heard from Amykins? I know she was getting on the transplant list at Brigham and Women's and I have not seen a post from her in quite a while. I hope everything is okay!!!

I was just driving back from the hospital and there was a girl driving next to me who looked JUSt like Liz's picture. Then she drove by me and her license plate said... get this... "LIZARD". do do do do!!! And for those who say this is off topic, you are right. but too late now! I already...

I posted this in the adult section... but thought it might be of use here. We have 36 Boost shakes that Mike doesn't need. We are in RI. If anyone in the area... RI, MA, CT... needs them, reply today. I can come meet you somewhere to give them to you. Otherwise, I will bring them to a food...

Mike and I are going to bring some boost shakes to a food bank today. I think we have about 30 of them. He doesn't need them because he doesn't need the calories anymore (at a great weight). If anyone in the area (MA, CT, RI) responds in the next hour or 2, I'd be willing to drive them to you...

Mike woke up because of a horrible headache early this morning. He had pulled off his o2 during the night because it was bothering his nose. It was like a band around his head at the temple level. He took an ibuprofen, drank a bottle of gatorade, put his o2 back on and I rubbed it for a while...

Just in case anyone was wondering, Mike was discharged on Monday night. He feels so much better. His pfts were back up to 27% which is the same as they were after his hospital stays in December and March. Yay! He hasn't lost anything! He has also started hypertonic saline which helps a LOT...

I just thought I would make sure all the families out there are aware of Early Intervention and that it is available for you. A diagnosis of cystic fibrosis automatically makes you eligible for Early Intervention services. Early Intervention is for kids from birth to age 36 months. EI is a...