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  1. R

    cursed blessing

    I have had Cystic Fibrosis (CF) for almost 29 years and diabetes for almost 10 years. These two things have been a cursed blessing for me. With the curse of my Cf, I get tired very quickly and have no energy. I have to work in 4 hours of breathing treatments. I get tired of waiting on all the...
  2. R

    how can i change my username?

    let me know in a private message
  3. R

    how to change

    How can I change my user name?
  4. R

    can anyone help me not to feel so tired

    I am feeling fine with my lungs. My doc said that they were clear. My allergies are making me cough. I can sleep pretty easily at nights. My propblem is I am tired all the time. But my lung functions are 39%. I could be tired due to the lack of oxygen. I could be tired due to the daylight...
  5. R

    allergies?

    who has allergies that affect their CF? My allergies are making my lung fuctions low but my Lungs clear.
  6. R

    Sick of treatments?

    does anyone get sick of doing treatments all the time and taking medication all the time? Sometimes I feel CF is a never ending chore. I was just wondering if anyone else feels the same way. What Cf related thing are you sick of doing?
  7. R

    just for fun part 1

    Since almost everything is ended, this will be fun to do. What is the best Tv seris finalle you ever seen and why did you enjoy it? 1. Charmed- the show had all the important charaters that did a fantastic job of solving everything and told what happen to them for years to come 2. Friends- was...
  8. R

    just for fun part 1

    Since almost everything is ended, this will be fun to do. What is the best Tv seris finalle you ever seen and why did you enjoy it? 1. Charmed- the show had all the important charaters that did a fantastic job of solving everything and told what happen to them for years to come 2. Friends- was...
  9. R

    just for fun part 2

    Share the love! I have a theory that there is no movie without something lame, stupid or just plain stupid. Add yours! Share with me anything lame whether it may be a scene, line, the actors, or the music to the movie. the dumbest thing in a movie I saw is........ 1. in Romy and michelle. I...
  10. R

    just for fun part 2

    Share the love! I have a theory that there is no movie without something lame, stupid or just plain stupid. Add yours! Share with me anything lame whether it may be a scene, line, the actors, or the music to the movie. the dumbest thing in a movie I saw is........ 1. in Romy and michelle. I...
  11. R

    just for fun part 1

    Since almost everything is ended, this will be fun to do. What is the best Tv seris finalle you ever seen and why did you enjoy it? 1. Charmed- the show had all the important charaters that did a fantastic job of solving everything and told what happen to them for years to come 2. Friends- was...
  12. R

    It will help you improve you health!

    does any one have a member ship to a gym? What kind of exercise do you do? I just joined one in October and it really has made me better. Usually I go in the hospital every December but i didn't go in last December because of all the exercise I do. It's been a year and a half since I was in the...
  13. R

    Another question about the time of month

    sometimes I have a very light flow and others it's just a tad bit more than a lite flow. I know I am a complete air head but it's normal for the flow to change or is it consistant to change flows evry month.
  14. R

    need help with helping someone with CF

    The title sums it up. So here is more details. MY B/F is worried that I will get really worse and leave him behind. I told him all the facts and have told him that people do live a long life with CF. I told him that dying is something we all have to do, people die suddenly from any type of...
  15. R

    myspace.com

    If you are into myspace.com, check me out. <a target=_blank class=ftalternatingbarlinklarge href="http://www.myspace.com/goofygirly212 ">http://www.myspace.com/goofygirly212 </a>
  16. R

    does this work for you

    Does Hypertonic solution for you? I did a test run at my clinic today. My therapist said there was some good airway in my lungs after I did the treatment. She couldn't hear some air moving before I did the hypertonic solution. I did notice that my coughing has increased when I did this...
  17. R

    has any one tried Glyconutrients?

    I was just wondering if any one has tried Glyconutrients? How has it affected you? Could you tell me any detail you might have about Glyconutrients? Someone showed me information about them. Could you give me any websites for this?
  18. R

    Can everyone.......

    just get along? <img src="i/expressions/face-icon-small-happy.gif" border="0"> Or another question could be is that before we post our opinions and complain about a person being too negative can we ask them more questions on where they are coming from? some people just need to express themselves...
  19. R

    does anyone feel....

    Does anyone still feel like they are left behind with their friends and family? I still do. I know my friends love me and care for me but I just can't do all the activites they do or still feel tired two days later after a big night. Does anyone still feel embarrassed they have coughing fits...
  20. R

    future insurance

    I am getting serious with someone and we ar worried about getting insurance with my CF needs. Any words of wisdom?
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