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The page for the patient registry on the CFF site ( <a target=_blank class=ftalternatingbarlinklarge href="http://www.cff.org/LivingWithCF/CareCenterNetwork/PatientRegistry/">http://www.cff.org/LivingWithC...twork/PatientRegistry/</a> ) has been updated to say that "Data from 2005 will be...

So, I've been playing around with my cough ever since reading Amy's post on coughing this weekend (Thanks Amy by the way!!!). I'm not sure if I'm doing right, but I've been trying it every fifteen minutes or so at work all day today and I was just asked by one of my support staff if I was sick...

An anonymous posted in Newly Diagnosed with the thread title <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=902&threadid=12277&enterthread=y">SearchingForAnswers</a> . She has all kinds of questions about possibility of symptoms...

Last Friday I started taking an antibiotic, Bactrim, because the mucus in my sinuses had gone green and I was waking up with a mouth full of mucus that I had to swab down. (No sentence should include the word mucus two times). Well, as of this morning the mucus in my head seems to have cleared...

I was at lunch the other day with a diabetic friend and some how in the course of the conversation, we ended up taking my blood sugar. Now, I have no diabetes issues of any types (that's why I'm saying this is off topic), but I am always curious about the quantitative numbers of health, so I'm...

I'm hoping someone has some suggestions to help get a sufficient quantity off of a sweat test.  <br> <br> I originally had a positive sweat test years ago which had insufficient quantity, but they went ahead and run.  Then, a week or so ago, I went in to get this redone at a certified cf sweat...

After reading a lot of information that seemed to hone in on the one second forced exhalation volume as a measurement of lung health, I got curious and called around to a couple of doctors to get some values.<br> <br> 3/95   127%<br> 4/98   124%<br> 7//01  88% (was sick)<br> 4/04   119%<br> 4/05...

I've noticed several posts of people wanting information about various clinics and the ability to review them.  I came across a webpage for a hospital, <a href= "http://www.dhmc.org/QualityReports/list.cfm?metrics=CF">Dartmouth-Hitchcock Medical Center</a>, which had a quality report.  This...

I've seen a couple of posts along with some research articles that mention symptomatic carriers.  It seems these symptoms are typically chronic sinusitis with some references to asthma.  <br> <br> Does anyone know anything about the frequency and severity of these traits?  We had already been...

After posting a couple of weeks ago about some CF speculations, I got in contact with my local CF center (through the help of a board member) who recommended that I get a second sweat test.  The results came back a 139.  Isn't this really high??  They said my previous lower value was likely in...

<p class="msonormal">I have a kind of odd question.  Are there actual "mild" forms of cystic fibrosis?  I am a 25 year old Caucasian female who had a positive sweat test at the age of 9, but did not have enough symptoms to warrant a CF diagnosis at all.  Coupled with the lack of symptoms, I am...