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Hi there I'm currently listed and waiting, and thinking, and thinking and thinking...... i'm sure you all know how it is, thousands of questions whizzing around my head all day every day, but as I have cepacia i'm unable to actually meet somebody who's been transplanted and put them through an...

Ok a question for all of you not in New Zealand, which will be pretty much everybody I imagine <img src="i/expressions/face-icon-small-happy.gif" border="0"> I have successfully over the last year or so, managed to flick my immune response to favour TH1 rather than TH2 and have pretty much...

I've been considering suggesting to my doc for some time now, that instead of constantly giving me oral AB's (which seldom work) or yet another round of IVs, that we talk about the possibility of either regular inhaled AB's or just a course of inhaled AB's the next time i get sick. Now...

This is what i've been waiting for - we have nearly everything else covered but so far, are unable to reverse lung scarring. Fingers crossed it all works out, and QUICKLY!!! ******************************************************** Trials of new wonder drug to start in a year AAP | Monday, 18...

Thought you guys might appreciate a giggle: actual writings from hospital charts! 1. The patient refused autopsy. 2. The patient has no previous history of suicide. 3. Patient has left white blood cells at another hospital. 4. She has no rigors or shaking chills, but her husband states she was...

Just wondering if this is yet another supplement i should add to my arsenal? Apparently it's a precursor to oestrogen and possibly other hormones and can impact severity of CF and energy levels. have only read about it briefly as at work and being watched.........anybody have any experience with...

well here i am, precisely 4 days afer finishing IV's and i've caught a darned cold!! SWEAR WORDS!!!!! I have to work as have not long had a week off, but am working from home so i don't spread my greeblies around the office, then catch it back again in a week or two. I'm keeping warm, doing...

Hi all Ok, down here in the butthole of the world our medical 'experts' (and i use the term loosely) don't even know about, let alone recommend the use of a vest for chest physio. Now I've tried just about everything I can think of to try and get gunk up out of my lungs in order to stay...

I've just finished two weeks of IV's for my chest and my lungs feel very clear, can't bring anything up at all and haven't for at least a week. But, my throat feels weird. It's not sore at all, but I feel like there is phlegm in there and I have to clear it or cough often, but it's definitely...

Hi there I'm out of ADEK's and desperately need some more. My question is around pricing and freight to New Zealand. How much for the traditional ADEK's per bottle of 60 and how much are the new AquaADEK's per bottle of 60 and how much to send them to New Zealand as quickly as possible but still...

Hi everybody My doc is on leave having her first baby at present and I've decided that as i'm starting to get a little chesty and have only come off IV's 5 weeks ago, i want to start a daily inhalation of Tobramycin. We don't have TOBI over here but i understand from my nephew that it is...

I have Cepacia Multivorans (Genomovar 2) and first cultured it in June 2005. Since then I have probably done at least 8 sputum cultures and have cultured this Cepacia every time, usually at moderate levels, once only light levels. However in my last sputum culture in January, when I gave a much...

Ok, i finally decided to give oral Glutathione a whirl and ordered some via TheraNaturals as somebody on here suggested, but I think I may have got the wrong one. The one I'm using is called GSH Caps Reduced L Glutathione, they are 500mg's and I am taking two a day. Is this the right one to use...

I just had to share with somebody and although i told my cats all about it, they didn't seem overly interested!! <img src="i/expressions/face-icon-small-happy.gif" border="0"> After a very rough 2005/2006 i have had the most amazing start to 2007 and we're only in January. After finally...

I'm wondering if anybody has experienced similar to what I'm getting at the moment. I came off two weeks of IV Ceftazadime and Meropenem a week ago today and have noticed that over the last week i have been getting a mucusy vaginal discharge with a little blood in it - I've also been a bit...

I haven't seen a post from KiwiLady for a few months and i'm worried. Has anybody seen or heard from my fellow kiwi???? Hoping all is ok...Eileen if you are out there plse let me know you're ok, my hotmail acct got closed down due to lack of use and i've lost your email address.

Hi all I've been thinking recently about going in to a colonic irrigation centre to see if giving my bowels a good clean out might help my absorption of nutrients and maybe even help me to put on some weight. I've always been horribly thin, but was undiagnosed for 19 years of my life and...

Hi all I've very recently started nebulising Pulmozyme, a week ago to be exact. Liz, I know you have been using it for about a month now and i know many others on this site have been using it for years and find it really beneficial. I've read a little bit of research on what it does and how...

Hi all<br> <br> I've read many different explanations of why some CF'ers get finger clubbing - some sources say it is due to low O2 sats, some say it is due to malabsorption of food, some just don't know.<br> <br> I'm curious to see if we as a community can work it out and while I'm at it, I...

ok, now i'm in a bit of bind here and would love to hear some advice.....<br> <br> there are two oral antibiotics that my bugs are still sensitive to, so obviously i want to be able to continue to take them, but at the moment i'm suffering from what i THINK is side effects to one/both of them...