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Thanks for the recommendations, we'll try them.

Thanks for the recommendations, we'll try them.

Thanks for the recommendations, we'll try them.

My 6 month old grandson with cf has his 3rd cold and really struggles with nursing and a congested nose. Is there anything besides saline drops to use on his cold. I have heard that a decongestent isn't good for his cf, any help with this would be wonderful. Thanks

My 6 month old grandson with cf has his 3rd cold and really struggles with nursing and a congested nose. Is there anything besides saline drops to use on his cold. I have heard that a decongestent isn't good for his cf, any help with this would be wonderful. Thanks

My 6 month old grandson with cf has his 3rd cold and really struggles with nursing and a congested nose. Is there anything besides saline drops to use on his cold. I have heard that a decongestent isn't good for his cf, any help with this would be wonderful. Thanks

I happen to think you have the most beautiful baby I've ever seen.

Ok now I understand these terms, thanks so much. It pays to ask. CC

I am wondering what CFRD and FEVI are? Any help would be great. Thanks - CC

Lynda: Major congrat! Live on, my sister is 45 1/2 w/cf and she's living life to the fullest, always has. Keep up the great jourey. cfnana7

Yesterday, our grandson John went to our CF clinic for his 2nd visit there, he's just over 1 month old. He gained 2 lbs. in two weeks, yippeeeee! We're very happy. His doctor increased his endzymes from 1/2 capsule at each feeding to 3/4 because he still can get ravionous 1-2 times a day...

Thanks to everyone for their input, I'm amazed at the knowledge you all have. I talked with my sister yesterday, she is 45 with cf and has pseudomonas in her sinuses and has for years, she has had 6 surgeries to strip them out. She said she's done with that, so far she's able to live her life...

Dee Dee: Griffin looks fantastic, that's so great to know. Thanks for the info and encouragement, I'm learning more as I go along.

<img src="i/expressions/brokenheart.gif" border="0"> My new grandson was diagnosed last week with two mutations, F508 which I can find info on and 1717-1g2a which I am looking for info on. I am a sibling of two cf holders, 1 male who didn't survive, he died in 1983 age 17 and my sister, who is...