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I've had Pamidronate once. The side effects were extreme! I developed a high fever, with violent heaving for days. I also had dizziness, severe nausea, edema, joint & muscle pain that lasted for weeks. Needless to say I could not take it again. I've had less side effects with oral...

I was diagnosed with myofacial pain syndrome several years ago. I went to countless doctors before finally being diagnosed, by a pain specialist who suffered from the condition himself. The pain is very difficult to treat. It doesn't respond to pills, chiropractors, narcotics, etc. Physical...

In addition to CF I inherited a optic nerve neuropathy from my mother & grandfather. It eventually causes blindness.

In addition to CF I inherited a optic nerve neuropathy from my mother & grandfather. It eventually causes blindness.

In 2007 my FEV1 was 23% & I was on continuous O2. My weight was only 87lbs (I'm 5'6"). The CF doctor suggested a transplant, but I didn't feel my lungs had reached that point. My doctor supported my decision. I gained weight by using my feeding tube more often (I hate the darn thing) &...

In 2007 my FEV1 was 23% & I was on continuous O2. My weight was only 87lbs (I'm 5'6"). The CF doctor suggested a transplant, but I didn't feel my lungs had reached that point. My doctor supported my decision. I gained weight by using my feeding tube more often (I hate the darn thing) &...

I've lived in Davis County (northern) Utah since I was 2. I don't have any experience with the pedatric clinic at Primary Children's Hospital, since I go to the adult CF clinic at University Hospital. But the 2 hospitals are linked together, so I often see Dr. Chatfield when I'm admitted. I...

I've lived in Davis County (northern) Utah since I was 2. I don't have any experience with the pedatric clinic at Primary Children's Hospital, since I go to the adult CF clinic at University Hospital. But the 2 hospitals are linked together, so I often see Dr. Chatfield when I'm admitted. I...

I've lived in Davis County (northern) Utah since I was 2. I don't have any experience with the pedatric clinic at Primary Children's Hospital, since I go to the adult CF clinic at University Hospital. But the 2 hospitals are linked together, so I often see Dr. Chatfield when I'm admitted. I...

Even tho I go on walks & do pulmonary rehab 30mins a day, I always get very sore arm & leg muscles. My legs even swell for about 10 days. I did home IV's exclusively for many years, but when my FEV1 dropped to 23% in 2007, I started going into the hospital for better CPT & rest. Though my...

Even tho I go on walks & do pulmonary rehab 30mins a day, I always get very sore arm & leg muscles. My legs even swell for about 10 days. I did home IV's exclusively for many years, but when my FEV1 dropped to 23% in 2007, I started going into the hospital for better CPT & rest. Though my...

Even tho I go on walks & do pulmonary rehab 30mins a day, I always get very sore arm & leg muscles. My legs even swell for about 10 days. <br />I did home IV's exclusively for many years, but when my FEV1 dropped to 23% in 2007, I started going into the hospital for better CPT & rest. Though...

Sinus disease, snotty noses, & headaches is the thing I will NOT miss most! I will also not miss never feeling good & always being in pain! I will not miss constantly worrying that I'll be to sick to meet my responsiblities. I'm afraid I could go on forever about the things I will not miss...

Sinus disease, snotty noses, & headaches is the thing I will NOT miss most! I will also not miss never feeling good & always being in pain! I will not miss constantly worrying that I'll be to sick to meet my responsiblities. I'm afraid I could go on forever about the things I will not miss...

Sinus disease, snotty noses, & headaches is the thing I will NOT miss most! I will also not miss never feeling good & always being in pain! I will not miss constantly worrying that I'll be to sick to meet my responsiblities. <br />I'm afraid I could go on forever about the things I will not...

Sinus disease, snotty noses, & headaches is the thing I will NOT miss most! I will also not miss never feeling good & always being in pain! I will not miss constantly worrying that I'll be to sick to meet my responsiblities. I'm afraid I could go on forever about the things I will not miss...

Sinus disease, snotty noses, & headaches is the thing I will NOT miss most! I will also not miss never feeling good & always being in pain! I will not miss constantly worrying that I'll be to sick to meet my responsiblities. I'm afraid I could go on forever about the things I will not miss...

Sinus disease, snotty noses, & headaches is the thing I will NOT miss most! I will also not miss never feeling good & always being in pain! I will not miss constantly worrying that I'll be to sick to meet my responsiblities. <br />I'm afraid I could go on forever about the things I will not...

I was told never to use patroleum products with O2! It can cause the oxygen to ignite!

I was told never to use patroleum products with O2! It can cause the oxygen to ignite!