Search results

  1. M

    Not sure what to do??

    Cristin - My son is 12 now and has CF. He has had nasal polyps removed 4 times. I was always told that if kids had nasal polyps it's a sure sign of CF. (I could be wrong but I would definetly DEMAND the genetic testing.) If it is CF your son will feel soooo much better with the proper...
  2. M

    Not sure what to do??

    Cristin - My son is 12 now and has CF. He has had nasal polyps removed 4 times. I was always told that if kids had nasal polyps it's a sure sign of CF. (I could be wrong but I would definetly DEMAND the genetic testing.) If it is CF your son will feel soooo much better with the proper...
  3. M

    Not sure what to do??

    Cristin - My son is 12 now and has CF. He has had nasal polyps removed 4 times. I was always told that if kids had nasal polyps it's a sure sign of CF. (I could be wrong but I would definetly DEMAND the genetic testing.) If it is CF your son will feel soooo much better with the proper...
  4. M

    Not sure what to do??

    Cristin - My son is 12 now and has CF. He has had nasal polyps removed 4 times. I was always told that if kids had nasal polyps it's a sure sign of CF. (I could be wrong but I would definetly DEMAND the genetic testing.) If it is CF your son will feel soooo much better with the proper...
  5. M

    Not sure what to do??

    Cristin - My son is 12 now and has CF. He has had nasal polyps removed 4 times. I was always told that if kids had nasal polyps it's a sure sign of CF. (I could be wrong but I would definetly DEMAND the genetic testing.) If it is CF your son will feel soooo much better with the proper...
  6. M

    So sorry! Typing.While.Upset. (ignore previous ramblings)

    I totally agree with the above poster. If you said she is doing better with enzymes it sure could be a sign. I HATE when doctors say "it doesn't sound like CF". Everyones CF is so different and it is a very complicating disease. My son was diagnosed when he was 6 months old. Yes we were...
  7. M

    So sorry! Typing.While.Upset. (ignore previous ramblings)

    I totally agree with the above poster. If you said she is doing better with enzymes it sure could be a sign. I HATE when doctors say "it doesn't sound like CF". Everyones CF is so different and it is a very complicating disease. My son was diagnosed when he was 6 months old. Yes we were...
  8. M

    So sorry! Typing.While.Upset. (ignore previous ramblings)

    I totally agree with the above poster. If you said she is doing better with enzymes it sure could be a sign. I HATE when doctors say "it doesn't sound like CF". Everyones CF is so different and it is a very complicating disease. My son was diagnosed when he was 6 months old. Yes we were...
  9. M

    So sorry! Typing.While.Upset. (ignore previous ramblings)

    I totally agree with the above poster. If you said she is doing better with enzymes it sure could be a sign. I HATE when doctors say "it doesn't sound like CF". Everyones CF is so different and it is a very complicating disease. My son was diagnosed when he was 6 months old. Yes we were...
  10. M

    So sorry! Typing.While.Upset. (ignore previous ramblings)

    I totally agree with the above poster. If you said she is doing better with enzymes it sure could be a sign. I HATE when doctors say "it doesn't sound like CF". Everyones CF is so different and it is a very complicating disease. My son was diagnosed when he was 6 months old. Yes we were...
  11. M

    STILL COPING

    Oh my - Mommytodiego - I'm overwhelmed just reading that! I can't imagine what you all went through! I cried for 4 days after my son was diagnosed at 6 months old. Now my son is 11 - is really pretty healthy (hasn't missed a day of school for sickness in years) and is very active. So it does...
  12. M

    STILL COPING

    Oh my - Mommytodiego - I'm overwhelmed just reading that! I can't imagine what you all went through! I cried for 4 days after my son was diagnosed at 6 months old. Now my son is 11 - is really pretty healthy (hasn't missed a day of school for sickness in years) and is very active. So it does...
  13. M

    STILL COPING

    Oh my - Mommytodiego - I'm overwhelmed just reading that! I can't imagine what you all went through! I cried for 4 days after my son was diagnosed at 6 months old. Now my son is 11 - is really pretty healthy (hasn't missed a day of school for sickness in years) and is very active. So it does...
  14. M

    STILL COPING

    Oh my - Mommytodiego - I'm overwhelmed just reading that! I can't imagine what you all went through! I cried for 4 days after my son was diagnosed at 6 months old. Now my son is 11 - is really pretty healthy (hasn't missed a day of school for sickness in years) and is very active. So it does...
  15. M

    STILL COPING

    Oh my - Mommytodiego - I'm overwhelmed just reading that! I can't imagine what you all went through! I cried for 4 days after my son was diagnosed at 6 months old. Now my son is 11 - is really pretty healthy (hasn't missed a day of school for sickness in years) and is very active. So it does...
  16. M

    Steam bags

    I'll have to try the bags also. When I was on the phone with the CF nurse the other day I was talking about boiling nebs etc and she said at the conference that they went to Avantis (I believe) is coming out with a machine specifically made for nebs - to wash and sterilize. I told her - about...
  17. M

    Steam bags

    I'll have to try the bags also. When I was on the phone with the CF nurse the other day I was talking about boiling nebs etc and she said at the conference that they went to Avantis (I believe) is coming out with a machine specifically made for nebs - to wash and sterilize. I told her - about...
  18. M

    Steam bags

    I'll have to try the bags also. When I was on the phone with the CF nurse the other day I was talking about boiling nebs etc and she said at the conference that they went to Avantis (I believe) is coming out with a machine specifically made for nebs - to wash and sterilize. I told her - about...
  19. M

    Steam bags

    I'll have to try the bags also. When I was on the phone with the CF nurse the other day I was talking about boiling nebs etc and she said at the conference that they went to Avantis (I believe) is coming out with a machine specifically made for nebs - to wash and sterilize. I told her - about...
  20. M

    Steam bags

    I'll have to try the bags also. When I was on the phone with the CF nurse the other day I was talking about boiling nebs etc and she said at the conference that they went to Avantis (I believe) is coming out with a machine specifically made for nebs - to wash and sterilize. I told her - about...
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