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It's a 25% chance of CF, Bill, not 50%. (Doing things just naturally)

Thank you everyone. I ended up emailing and speaking with the teacher. We will be going forward with a 504 and I'm happy about that. I really appreciate being able to come here with these sorts of questions and getting such quick answers!

So we decided to NOT do an IEP or 504 this year for Parker when he started Kindergarten. I kind of came to the conclusion of not pushing for it because the teacher, nurse and I had a sit down talk about all his stuff before school and they seemed like they would be overly cautious with him so I...

Our son was 10 months when we got his but I do believe that every CF clinic is different in when they start pushing for it. I honestly can't think of how we got past that stage with our kiddo so I'm sorry I can't be of more help. I would suggest to just try everything you can, even doing it...

You may get more of a response with this if you post this in the "Families" section. We do not use humidifiers because I believe the risk of what could be in the water is worse than the benefits you could get from using one.

My version of "nasty" may not be what your version is. I wasn't really worried about keeping him out of school because he may pass something to someone else - I was more worried with treatments and trying to keep him out of the hospital. I have been a SAHM and when he wasn't in school could do...

I really needed to hear that Twist - Thank you. Does everyone just use paper towels or is there anything else (like something to hang things on) to dry them? I guess I'm thinking of like a baby bottle drying rack - or then would I need to sterilize that too?

Parker has a nasty cough so I decided to keep him home for the day so I can get extra treatments in. He is acting fine, however, running all around the house and playing like normal. Nobody else is sick so I'm pretty sure he is not contagious to the normal community. When do you keep your...

Thank you Sarah. I thought you were supposed to wash and sterilize them right away? I've never heard of drying them in the oven - do you do that just so it doesn't get anything on them that is in the normal environment?

There's a new doctor in town! And he is much more proactive than other docs at the clinic we go to. I am totally okay with being proactive and I know that so many CFers are already doing these nebs at a way younger age than PK (5 1/2 yo.). But the problem I have always dealt with in the past...

Steve- that makes much more sense. Thank you for clarifying. I was angered as well how someone twisted it politically. I am so ready for elections to be over :)

BandDirectorSteve - this has NOTHING to do with Obama's healthcare plan if that was the point you were trying to get across? The parents are the ones that told the school about the child's genetics. I also agree that we have been told different things. I had always thought that two CF genes =...

I just wonder why the parents thought that it was pertinent to share with the school that he has "mutations" if they don't think it's significant enough to do something medically about it. The video was quite confusing on the facts about the child's genes but I'm happy any time there is media...

faith - I don't think it was the same kid. But looking more into it it seems that he does have 2 mutations - they just have not diagnosed him because sweat tests have come out negative and the genes have not been shown to cause CF. Here is another link...

http://video.today.msnbc.msn.com/today/49446231#49446231

I personally have no idea but would be wary. Here is another thread about it that you could read: http://forum.cysticfibrosis.com/threads/24594-Salt-Rooms

Thank you Sarah. I am more of a pessimist when it comes to these things and my hubby is more of an optimist - so I know (even though he will listen) that he doesn't really like hearing my negativity towards this subject. I know in my heart that things are meant to be and will be okay either...

We did it with Parker and I would do it again in a heartbeat. RSV is NOT something you want a baby to to get let alone a baby with CF.

Thank you guys. I guess I just need to not get my hopes up if the ultrasound comes out okay in a few weeks. I wish there was a way to know without putting baby at risk - I am so much of a worry wart. :) Missa - did both children have EB/MI?

It seems that you already think that they are doing too much for your daughter. If I were you I would put a stop to it immediately. Yes, she has CF, but she should also be treated like a regular child and not be so separated from how the other children are treated. AND I would totally talk...