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    Gallbladder Removal

    I am having my Gallbladder removed on Wednesday. As far as I know, about 26% of CF patients have experience with gallstones or removal.<div><br></div><div>I have a lot of gallstones, and surgery is needed. </div><div><br></div><div>I was wondering if those of you who have had gallstones or...
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    Medicare Part A Hospital Coverage

    Hello, I have Medicare Part A for my Hospital coverage. I haven't been admitted to a hospital for CF since July 2006. At that time, I was in a Medicare Advantage Plan, and coverage at the hospital was basically 100% at that time. I have never been in the hospital for a CF "tune-up" using...
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    "A Little Love Story"

    I just finished reading "A Little Love Story" by Roland Merullo. I am wondering if any of you have read it and what you think of the book. It is CF related. I loved the book and highly recommend it. It is a touching story.
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    High School Reunion

    For those of you who remember my topic about my 20th high school reunion, well I am pleased to report that it went very well. I had a great time seeing old classmates. I hope the pictures I have attached are viewable. The group picture is of the 3 sets of twins in our class, which includes...
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    20th High School Reunion

    Hi, In two weeks I will be attending my 20th high school reunion. I was adult-diagnosed and I don't think anyone knows I have CF except for my twin sister. CF doesn't define me and I graduated froom college and have had several successful jobs, but I am not working now for a variety of medical...
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    Aspergillus Fungus

    Hi, My CF nurse called me today and explained to me that my sputum culture revealed a new bug for me, Aspergillus Fungus. In addition to this, I have Staph, two strains of Pseudomonas, and a TB cousin bug. I am wondering if anyone knows anything about the Aspergillus Fungus, and what it might...
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    e-Flow SCF

    Hi, I received my e-Flow SCF today from Source CF. I get my inhaled Tobramycin from IV Solutions in Texas, and for as long as I am on Tobramycin, I will have the e-Flow to use. I am interested in knowing others experience with the e-Flow, if you like it, and things to watch out for when using...
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    The Vest

    Hi, I am just curious how many total hours have been accumulated on some of the Vest machines we use. How many hours are on your Vest machine? I have always wondered what the average lifespan of the machine might be. Has anybody had to replace their Vest machine with a new one due to usage or...
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    Pre-Diabetes and CF

    Hi, My Primary Physician today informed me today that he feels I am in a "Pre-Diabetes" stage right now, and probably CF related. My recent lab results were a 113 fasting Glucose. I am not sure if this is high or just borderline. We are repeating my labs in two months, so I was told to cut...
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    I am excluded from using Azithromycin

    Hi, At my quarterly clinic visit on Monday, it seems Azithromycin usage is being discussed with most CF patients, and my Pulmonologist wanted to prescribe it for me. But, after checking on the computer, he realized that I have a "TB Cousin" something and I cannot take it. Does anyone know what...
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    On the lighter side

    Hi all, Everytime I use the Vest, my nose itches a lot. Has anyone else experienced this? It's not a problem, I just think it is interesting. Is it just me?
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    Hello I'm New Here

    Hi, My name is Craig. I am new to this site and would like to introduce myself. I was diagnosed with CF at age 34, although I had symptoms all of my life. It just took a long time for my doctors to put the pieces together and after several bouts with pnemonia etc. the ordered sweat test came up...
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