Search results

  1. M

    To "Make-A-Wish" or Not

    To Lori, I will let you know how it goes, when it finally gets scheduled. My son loves cars and motorcyles, so he wants to go see West Coast Choppers and meet the owner Jesse James. (Sandra Bullocks husband). Hoping she is somehow involved!!!!!!
  2. M

    To "Make-A-Wish" or Not

    To Lori, I will let you know how it goes, when it finally gets scheduled. My son loves cars and motorcyles, so he wants to go see West Coast Choppers and meet the owner Jesse James. (Sandra Bullocks husband). Hoping she is somehow involved!!!!!!
  3. M

    To "Make-A-Wish" or Not

    To Lori, I will let you know how it goes, when it finally gets scheduled. My son loves cars and motorcyles, so he wants to go see West Coast Choppers and meet the owner Jesse James. (Sandra Bullocks husband). Hoping she is somehow involved!!!!!!
  4. M

    To "Make-A-Wish" or Not

    To Lori, I will let you know how it goes, when it finally gets scheduled. My son loves cars and motorcyles, so he wants to go see West Coast Choppers and meet the owner Jesse James. (Sandra Bullocks husband). Hoping she is somehow involved!!!!!!
  5. M

    To "Make-A-Wish" or Not

    To Lori, I will let you know how it goes, when it finally gets scheduled. My son loves cars and motorcyles, so he wants to go see West Coast Choppers and meet the owner Jesse James. (Sandra Bullocks husband). Hoping she is somehow involved!!!!!!
  6. M

    To "Make-A-Wish" or Not

    To Lori, I will let you know how it goes, when it finally gets scheduled. My son loves cars and motorcyles, so he wants to go see West Coast Choppers and meet the owner Jesse James. (Sandra Bullocks husband). Hoping she is somehow involved!!!!!!
  7. M

    Annual Review

    Hi, My son is 14 and we have been at this a long time. If posible, make sure that all the docs that need blood all order it at the same time. even the standard pediatrician check ups. My son also has Rheumatoid arthritis, so I contact his pulmonologist, rheumatologist and pediatrician and have...
  8. M

    Annual Review

    Hi, My son is 14 and we have been at this a long time. If posible, make sure that all the docs that need blood all order it at the same time. even the standard pediatrician check ups. My son also has Rheumatoid arthritis, so I contact his pulmonologist, rheumatologist and pediatrician and have...
  9. M

    Annual Review

    Hi, My son is 14 and we have been at this a long time. If posible, make sure that all the docs that need blood all order it at the same time. even the standard pediatrician check ups. My son also has Rheumatoid arthritis, so I contact his pulmonologist, rheumatologist and pediatrician and have...
  10. M

    To "Make-A-Wish" or Not

    To "Make-A-Wish Hi everyone, Yes the Cf kids in the US do get wishes. My son has been approved for a wish through the Make a Wish Foundation and we are just waiting for them to coordinate the trip. I do think the Doctor has a lot to do with it, and how they fill out the papaerwork. I...
  11. M

    To "Make-A-Wish" or Not

    To "Make-A-Wish Hi everyone, Yes the Cf kids in the US do get wishes. My son has been approved for a wish through the Make a Wish Foundation and we are just waiting for them to coordinate the trip. I do think the Doctor has a lot to do with it, and how they fill out the papaerwork. I...
  12. M

    To "Make-A-Wish" or Not

    To "Make-A-Wish Hi everyone, Yes the Cf kids in the US do get wishes. My son has been approved for a wish through the Make a Wish Foundation and we are just waiting for them to coordinate the trip. I do think the Doctor has a lot to do with it, and how they fill out the papaerwork. I...
  13. M

    new to this site

    is is just me or does it seem that most people with CF have other "diseases" as well? I am sitting here reading the boards and it just struck me that there appears to be more than just CF involved with almost everyone, or is it just easier for the docs to find more problems since we are so...
  14. M

    new to this site

    is is just me or does it seem that most people with CF have other "diseases" as well? I am sitting here reading the boards and it just struck me that there appears to be more than just CF involved with almost everyone, or is it just easier for the docs to find more problems since we are so...
  15. M

    new to this site

    is is just me or does it seem that most people with CF have other "diseases" as well? I am sitting here reading the boards and it just struck me that there appears to be more than just CF involved with almost everyone, or is it just easier for the docs to find more problems since we are so...
  16. M

    new to this site

    Mark has been on the Motrin for about 10 years, he goes for Kinectic blood studies on a regular basis. about 10 years ago there was a clinical trial in Cleveland for the Motrin therpay for children and the benefits outweighed the risks and it has done wonders so far. Our doctors are associated...
  17. M

    new to this site

    Mark has been on the Motrin for about 10 years, he goes for Kinectic blood studies on a regular basis. about 10 years ago there was a clinical trial in Cleveland for the Motrin therpay for children and the benefits outweighed the risks and it has done wonders so far. Our doctors are associated...
  18. M

    new to this site

    Mark has been on the Motrin for about 10 years, he goes for Kinectic blood studies on a regular basis. about 10 years ago there was a clinical trial in Cleveland for the Motrin therpay for children and the benefits outweighed the risks and it has done wonders so far. Our doctors are associated...
  19. M

    overwhelmed with RX $$$

    still new at this site thing, but if you are in the US contact your local department of family services , Ohio has the Bureau for children with medical handicaps which is somewhat income based but also based on what your insurance pays or not. Other states might have a progrma like this. you...
  20. M

    overwhelmed with RX $$$

    still new at this site thing, but if you are in the US contact your local department of family services , Ohio has the Bureau for children with medical handicaps which is somewhat income based but also based on what your insurance pays or not. Other states might have a progrma like this. you...
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