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I am so sorry for your situation! My daughter has CF, she is 8 years old and I can't imagine how she would be if she did not have medical care and her regualar treatments. I wanted to let you know that I am a CPS case manager in TN. You can make an anonoumys call and it will be labled as medical...

I am so sorry for your situation! My daughter has CF, she is 8 years old and I can't imagine how she would be if she did not have medical care and her regualar treatments. I wanted to let you know that I am a CPS case manager in TN. You can make an anonoumys call and it will be labled as medical...

I am so sorry for your situation! My daughter has CF, she is 8 years old and I can't imagine how she would be if she did not have medical care and her regualar treatments. I wanted to let you know that I am a CPS case manager in TN. You can make an anonoumys call and it will be labled as medical...

I am so sorry for your situation! My daughter has CF, she is 8 years old and I can't imagine how she would be if she did not have medical care and her regualar treatments. I wanted to let you know that I am a CPS case manager in TN. You can make an anonoumys call and it will be labled as medical...

I am so sorry for your situation! My daughter has CF, she is 8 years old and I can't imagine how she would be if she did not have medical care and her regualar treatments. I wanted to let you know that I am a CPS case manager in TN. You can make an anonoumys call and it will be labled as medical...

I am so sorry for your situation! My daughter has CF, she is 8 years old and I can't imagine how she would be if she did not have medical care and her regualar treatments. I wanted to let you know that I am a CPS case manager in TN. You can make an anonoumys call and it will be labled as medical...

Thank you so much for the great info! Chloe is takeing advair and Xopenex. She also takes singular for allergies. She uses Nasonex for the pollups in her nose. She isn't coughing up sputum when she is coughing and the cough just keeps on and on. She was on Zyvox in Nov for Multi Resistent...

Thank you so much for the great info! Chloe is takeing advair and Xopenex. She also takes singular for allergies. She uses Nasonex for the pollups in her nose. She isn't coughing up sputum when she is coughing and the cough just keeps on and on. She was on Zyvox in Nov for Multi Resistent...

Thank you so much for the great info! Chloe is takeing advair and Xopenex. She also takes singular for allergies. She uses Nasonex for the pollups in her nose. She isn't coughing up sputum when she is coughing and the cough just keeps on and on. She was on Zyvox in Nov for Multi Resistent...

Steve, We banked my youngest daughters cord blood. She is a carrier of CF but doesn't have it. I just wanted to know if you thought her cord blood could ever be used to help Chloe 7 with cf? Thank you for taking the time to answer all of our questions. Maggie

hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the...

hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the...

hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the...

My daughter has CF, she is 7yo and was diagnosed at 19mths. Chloe complained about leg pain when she was 6, for over a year. The Dr. did not seem very concerend about it. She has not mentioned it latley. I don't know what the leg pain is about. Hope you and your family are doing ok.

My daughter has CF, she is 7yo and was diagnosed at 19mths. Chloe complained about leg pain when she was 6, for over a year. The Dr. did not seem very concerend about it. She has not mentioned it latley. I don't know what the leg pain is about. Hope you and your family are doing ok.

My daughter has CF, she is 7yo and was diagnosed at 19mths. Chloe complained about leg pain when she was 6, for over a year. The Dr. did not seem very concerend about it. She has not mentioned it latley. I don't know what the leg pain is about. Hope you and your family are doing ok.