Hi, I'm New here

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yas

New member
<img src="i/expressions/heart.gif" border="0">hey there!!!This is my first time to reply ever,
i live in nairobi kenya and have a daughter who is 6 years with cf, i have the same
experience with my daughter,heard about pediasure now so i have started giving her but she makes alot of fuss on that too.
also refuses to nebulize or thump on chest,becomes very hard for me as got two other kids.anyway hope its gets better for you.welcome to the club<img src="i/expressions/face-icon-small-cool.gif" border="0">
 
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suttontabbyc

New member
Hey I am kinda new to all of this. Umm I was just wondering was is the odd of having kids with cf if you have cf and the dad dosen't. Do you know? I really want to have kids but I don't want to put them threw what I go threw every day. please write back
 
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suttontabbyc

New member
Hey I am kinda new to all of this. Umm I was just wondering was is the odd of having kids with cf if you have cf and the dad dosen't. Do you know? I really want to have kids but I don't want to put them threw what I go threw every day. please write back
 
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suttontabbyc

New member
Hey I am kinda new to all of this. Umm I was just wondering was is the odd of having kids with cf if you have cf and the dad dosen't. Do you know? I really want to have kids but I don't want to put them threw what I go threw every day. please write back
 
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chloeandmaggie

New member
hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the first overweight CF child. Actually her weight gain was so good that she doesn't drink them anymore. She takes 2 pancrease enzymes with meals and snacks. Chloe's biggest problems are the lung infections. At our last cf visit, the dr. said that she has cf related asthma, has anyone heard of that? It sounds redundent to me. Chloe has had a really hard time with the lung function test, she is not passing them. They say it is the Asthma? What? Sorry to go on but it is so very nice to speak with people who understand and know what i mean. Chloe does Tobi on 28 days off 28 days she is also on pulmyzme and a couple of other inhaled meds. We do the vest every day.
 
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chloeandmaggie

New member
hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the first overweight CF child. Actually her weight gain was so good that she doesn't drink them anymore. She takes 2 pancrease enzymes with meals and snacks. Chloe's biggest problems are the lung infections. At our last cf visit, the dr. said that she has cf related asthma, has anyone heard of that? It sounds redundent to me. Chloe has had a really hard time with the lung function test, she is not passing them. They say it is the Asthma? What? Sorry to go on but it is so very nice to speak with people who understand and know what i mean. Chloe does Tobi on 28 days off 28 days she is also on pulmyzme and a couple of other inhaled meds. We do the vest every day.
 
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chloeandmaggie

New member
hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the first overweight CF child. Actually her weight gain was so good that she doesn't drink them anymore. She takes 2 pancrease enzymes with meals and snacks. Chloe's biggest problems are the lung infections. At our last cf visit, the dr. said that she has cf related asthma, has anyone heard of that? It sounds redundent to me. Chloe has had a really hard time with the lung function test, she is not passing them. They say it is the Asthma? What? Sorry to go on but it is so very nice to speak with people who understand and know what i mean. Chloe does Tobi on 28 days off 28 days she is also on pulmyzme and a couple of other inhaled meds. We do the vest every day.
 
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JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chloeandmaggie</b></i>

hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the first overweight CF child. Actually her weight gain was so good that she doesn't drink them anymore. She takes 2 pancrease enzymes with meals and snacks. Chloe's biggest problems are the lung infections. At our last cf visit, the dr. said that she has cf related asthma, has anyone heard of that? It sounds redundent to me. Chloe has had a really hard time with the lung function test, she is not passing them. They say it is the Asthma? What? Sorry to go on but it is so very nice to speak with people who understand and know what i mean. Chloe does Tobi on 28 days off 28 days she is also on pulmyzme and a couple of other inhaled meds. We do the vest every day.</end quote></div>


I know CF & Asmtha seem redunent, but they are different. CF relates more to the mucuous and affects on the lungs from it. Asmtha is the actual airway issues. Many CFers have it. What I dont know off hand is if Asmtha comes eventually or not. I use albeuterol, pulmicort and advair for my CF & Asmtha. The Advair is the biggest help with the Asmtha since its longer lasting. Is Chloe on any actual Asthma meds? Her PFT will show poor results if she is having airway problems even without an infection. IN addiiton (from personal experience) the asmtha compononent might be interferring with her ability to get the sputum up which will lead to a continuous cycle of infections.
 
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JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chloeandmaggie</b></i>

hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the first overweight CF child. Actually her weight gain was so good that she doesn't drink them anymore. She takes 2 pancrease enzymes with meals and snacks. Chloe's biggest problems are the lung infections. At our last cf visit, the dr. said that she has cf related asthma, has anyone heard of that? It sounds redundent to me. Chloe has had a really hard time with the lung function test, she is not passing them. They say it is the Asthma? What? Sorry to go on but it is so very nice to speak with people who understand and know what i mean. Chloe does Tobi on 28 days off 28 days she is also on pulmyzme and a couple of other inhaled meds. We do the vest every day.</end quote></div>


I know CF & Asmtha seem redunent, but they are different. CF relates more to the mucuous and affects on the lungs from it. Asmtha is the actual airway issues. Many CFers have it. What I dont know off hand is if Asmtha comes eventually or not. I use albeuterol, pulmicort and advair for my CF & Asmtha. The Advair is the biggest help with the Asmtha since its longer lasting. Is Chloe on any actual Asthma meds? Her PFT will show poor results if she is having airway problems even without an infection. IN addiiton (from personal experience) the asmtha compononent might be interferring with her ability to get the sputum up which will lead to a continuous cycle of infections.
 
J

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>chloeandmaggie</b></i>

hey i am new as well, i have posted once before but i read all the time. My daughter Chloe was diagnosed at 19mths and she is seven now. When Chloe was diagnosed she was "faliure to thrive" which scared me to death by the way. She started drinking Ensure and well we joke that she will be the first overweight CF child. Actually her weight gain was so good that she doesn't drink them anymore. She takes 2 pancrease enzymes with meals and snacks. Chloe's biggest problems are the lung infections. At our last cf visit, the dr. said that she has cf related asthma, has anyone heard of that? It sounds redundent to me. Chloe has had a really hard time with the lung function test, she is not passing them. They say it is the Asthma? What? Sorry to go on but it is so very nice to speak with people who understand and know what i mean. Chloe does Tobi on 28 days off 28 days she is also on pulmyzme and a couple of other inhaled meds. We do the vest every day.</end quote></div>


I know CF & Asmtha seem redunent, but they are different. CF relates more to the mucuous and affects on the lungs from it. Asmtha is the actual airway issues. Many CFers have it. What I dont know off hand is if Asmtha comes eventually or not. I use albeuterol, pulmicort and advair for my CF & Asmtha. The Advair is the biggest help with the Asmtha since its longer lasting. Is Chloe on any actual Asthma meds? Her PFT will show poor results if she is having airway problems even without an infection. IN addiiton (from personal experience) the asmtha compononent might be interferring with her ability to get the sputum up which will lead to a continuous cycle of infections.
 
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chloeandmaggie

New member
Thank you so much for the great info! Chloe is takeing advair and Xopenex. She also takes singular for allergies. She uses Nasonex for the pollups in her nose. She isn't coughing up sputum when she is coughing and the cough just keeps on and on. She was on Zyvox in Nov for Multi Resistent Staph. She had psdomonus at the age of 2, which was the last time we were in the hospital. My fear is that her lungs are being scared with this consistant cough.
I noticed that you are Double Delta F508, chloe is too. What is Hemoptysis? Thanks for your input, I hope you are doing well.
O sorry I can not SPELL just ignore all the mis prints- lol
 
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chloeandmaggie

New member
Thank you so much for the great info! Chloe is takeing advair and Xopenex. She also takes singular for allergies. She uses Nasonex for the pollups in her nose. She isn't coughing up sputum when she is coughing and the cough just keeps on and on. She was on Zyvox in Nov for Multi Resistent Staph. She had psdomonus at the age of 2, which was the last time we were in the hospital. My fear is that her lungs are being scared with this consistant cough.
I noticed that you are Double Delta F508, chloe is too. What is Hemoptysis? Thanks for your input, I hope you are doing well.
O sorry I can not SPELL just ignore all the mis prints- lol
 
C

chloeandmaggie

New member
Thank you so much for the great info! Chloe is takeing advair and Xopenex. She also takes singular for allergies. She uses Nasonex for the pollups in her nose. She isn't coughing up sputum when she is coughing and the cough just keeps on and on. She was on Zyvox in Nov for Multi Resistent Staph. She had psdomonus at the age of 2, which was the last time we were in the hospital. My fear is that her lungs are being scared with this consistant cough.
I noticed that you are Double Delta F508, chloe is too. What is Hemoptysis? Thanks for your input, I hope you are doing well.
O sorry I can not SPELL just ignore all the mis prints- lol
 
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Samsmom

New member
to suttontabbyc, I noticed noone directly answered your question so here goes. If you have cf you can pass the cf gene to your child, but a person has to inherit 2 mutant genes to have cf with symptoms. If your husband is a carrier of a cf gene mutation then you have a 1 in 4 chance of having a child with cf. I think that just knowing you have cf means you have a 50 50 chance of your child being a carrier. Many states offer prenatal genetic screening these days if you want to know before a baby is born if it has cf or not. Hope this helped answer your question and I hope you continue to visit the site. Best wishes!!!
 
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Samsmom

New member
to suttontabbyc, I noticed noone directly answered your question so here goes. If you have cf you can pass the cf gene to your child, but a person has to inherit 2 mutant genes to have cf with symptoms. If your husband is a carrier of a cf gene mutation then you have a 1 in 4 chance of having a child with cf. I think that just knowing you have cf means you have a 50 50 chance of your child being a carrier. Many states offer prenatal genetic screening these days if you want to know before a baby is born if it has cf or not. Hope this helped answer your question and I hope you continue to visit the site. Best wishes!!!
 
S

Samsmom

New member
to suttontabbyc, I noticed noone directly answered your question so here goes. If you have cf you can pass the cf gene to your child, but a person has to inherit 2 mutant genes to have cf with symptoms. If your husband is a carrier of a cf gene mutation then you have a 1 in 4 chance of having a child with cf. I think that just knowing you have cf means you have a 50 50 chance of your child being a carrier. Many states offer prenatal genetic screening these days if you want to know before a baby is born if it has cf or not. Hope this helped answer your question and I hope you continue to visit the site. Best wishes!!!
 
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