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RE: Lung Transplant List I am so happy for your boyfriend getting listed!!! It is a great day when that happens. After all, it means you have a chance to have a healthy long life!! What more can be said about true happiness. It is also a scarey time, a time of wonderment, a time of...

The Vest Company is a very approachable company. If you cannot pay the deductible, or have problems affording it, you can talk to them and see if a payment plan can be arranged, or they will just absorb the cost themself. I have a vest and when I was being billed about 150.00 a month, I...

The allocation system that has been in place for years is TIME ON THE LIST.. .and of course your blood type and size. Now it will go by how long you can live with present lungs, what is the expected benefit from new lungs if you should get them, and your present health. Joanne Schum...

The New Lung Allocation goes into effect on May 4, 2005. All centers in the United States will have to follow the rules.. Should be interesting Joanne Schum luckylungsforjo@aol.com

Sandy, Does it occur after he does Albuterol? That can raise your heart rate too. Joanne Schum Joanne M. Schum Cystic Fibrosis Bi-lateral Lung Transplant Recipient September 12, 1997 University of North Carolina Hospitals Chapel Hill Residence: Upstate New York email...

Hi, You are going to move.... and then try to get on the waiting list Allan? Or do you mean you are on the wait list, and UNC has told you to move because you will get lungs soon? I hate to see anyone move to a center and then end up waiting there for months and months. Be sure you...

Hi, You are going to move.... and then try to get on the waiting list Allan? Or do you mean you are on the wait list, and UNC has told you to move because you will get lungs soon? I hate to see anyone move to a center and then end up waiting there for months and months. Be sure you...

Hi, My sister is 50 years old and has CF. She had her first baby when she was 24. She now has 4 kids and the last one born when she was 33. None of the kids have CF. She did not have any problem conceiving, in fact the last baby was a "surprise". She did well through her pregnancies, the...

Emily, You are more at risk for many forms of cancer post tx. The main reason being you are immune suppressed and if you immune system is not "100%" it means your body cannot fight cancer risks so well. I would guess that skin cancer is the #1 cancer post tx. There is something also...

Hi, You are true loving sister.. and it broke my heart to hear you say you would want to donate to your brother. Living Lung Lobar tx is an option, if there is not time to wait on the list. Living Lobar needs two donors, the same blood type, and free of illness and your PFT's have to be 100%...

Here is some great fundraising that Lungs for Life does.. .and an exclusive CF scarf.... Take a look! Lungs for Life Presents the Newest Offerings http://www.crystalallure.com/categories/awareness_jewelry_gifts.htm Lungs for Life http://www.lungsforlife.org/ Mission : The Lungs for...

Hi All, At least once a year I try to get this information out about Lungs for Life, as I serve on the board of directors. LFL is there to help those with CF and we have money to help many. So read the info and if you think you could use some help, do make the contact. Here it is. Lungs...

Sammi, I think the weight factor is very important in transplant. The stats show that if you are in your ideal BMI - body mass index that you have better survival numbers. Most likely centers differ on where your weight has to be before listing, and if there is a long wait for lungs, they...

Sarah, I have been diabetic fo 18 years now. It is under excellent control and my 3 month check came back at a 4.3..... !!! Reasons for people with CF getting diabetes. 1. As you get older, you have encountered more lung infections. Lung infections scar the lungs of course, but also damage...

Life Expectancy has been rising for years... as you can tell by the posts. I believe it was just in the last year or two that the number went from 32 to 33 years. For those with a lung transplant, life expectancy can add a day, or a month, or years... they say the average life expectancy post...

I don't live in the UK, but in the U.S. My lung tx was 7 years ago and it rang up a nice $986,000 The cost varies depending on how long on vent, how long in ICU, complications etc. and also the time you are in the hospital of course. My sister had her lung tx in 2001, and her tx cost about...

Hi, I had a lung transplant 7.5 years ago, and my sister 4 years ago. After lung tx you are immune compromised... meaning you have an immune system, but it is lower than others. Can you go outside, travel, play sports, work etc... Sure you can... that is why they give you a tx. They don't...

Tracy, Here is the web site for Brad Taylor... who I think we are referring to about the man being post lung tx 15 years in Aussie. I don't see the date of his tx listed there, or what center he had his tx. But there is an email for Brad. I have been in email contact with him and he is a...

Someone already answered this - as to why can a post lung tx person get pseudo or Aspergillous? Yes because we are immune compromised. I know people who are post lung tx, due to other lung illnesses and post tx they have gotten aspgerillous or pseudomonas. Generally treated with the same IV...

Brandy, You are not cured of CF after getting new lungs... Your lungs are cured of the CF gene. You will still have the enzyme issues, the sinus issues... but sometimes these improve greatly. My sister since her tx does not need any enzymes ( she use to take 8). My sinuses have improved...