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Transplant...
- Thread starter anonymous
- Start date
Hi,
You are going to move.... and then try to get on the waiting list Allan?
Or do you mean you are on the wait list, and UNC has told you to move because you will get lungs soon?
I hate to see anyone move to a center and then end up waiting there for months and months.
Be sure you understood UNC and what they meant about "moving" and when you should do it.
Most times, you go for evaluation, they either accept you or don't accept you, then you wait at home until your name reaches the near top positions. I know with the new system that it should be a shorter wait for you, but be sure you are listed before you move.
Email me if you want... I am confused
luckylungsforjo@aol.com
Joanne Schum
You are going to move.... and then try to get on the waiting list Allan?
Or do you mean you are on the wait list, and UNC has told you to move because you will get lungs soon?
I hate to see anyone move to a center and then end up waiting there for months and months.
Be sure you understood UNC and what they meant about "moving" and when you should do it.
Most times, you go for evaluation, they either accept you or don't accept you, then you wait at home until your name reaches the near top positions. I know with the new system that it should be a shorter wait for you, but be sure you are listed before you move.
Email me if you want... I am confused
luckylungsforjo@aol.com
Joanne Schum
Hi,
You are going to move.... and then try to get on the waiting list Allan?
Or do you mean you are on the wait list, and UNC has told you to move because you will get lungs soon?
I hate to see anyone move to a center and then end up waiting there for months and months.
Be sure you understood UNC and what they meant about "moving" and when you should do it.
Most times, you go for evaluation, they either accept you or don't accept you, then you wait at home until your name reaches the near top positions. I know with the new system that it should be a shorter wait for you, but be sure you are listed before you move.
Email me if you want... I am confused
luckylungsforjo@aol.com
Joanne Schum
You are going to move.... and then try to get on the waiting list Allan?
Or do you mean you are on the wait list, and UNC has told you to move because you will get lungs soon?
I hate to see anyone move to a center and then end up waiting there for months and months.
Be sure you understood UNC and what they meant about "moving" and when you should do it.
Most times, you go for evaluation, they either accept you or don't accept you, then you wait at home until your name reaches the near top positions. I know with the new system that it should be a shorter wait for you, but be sure you are listed before you move.
Email me if you want... I am confused
luckylungsforjo@aol.com
Joanne Schum
(1) For various retarded reasons, I can't even get on the waiting list until I can pay for the transplant.
(2) I can't pay UNC for the transplant while living in New York; my only health coverage is NYS Medicaid, which they don't accept.
(3) I could *potentially* pay them if I obtained North Carolina Medicaid, which would require me to move. After checking with the Social Security Administration, I would qualify for it with a simple address change.
(4) Thus, I found out whether they'd list me--assuming the financial issues checked out--and they said yes. I had gobs of tests done, and Becky Cicale emailed me that they were ready to put me on the list, and to "pack my bags."
(5) So, I'm currently in the process of moving.
Hope that answers your confusion, Joanne. In a nutshell, I *can't* be listed before I move. That was one of the main things weighing on my mind when I was thinking whether to proceed with it at all, as the chance always remains that they'll say "whoops, sorry, we won't do it after all" (like Duke University did to that poor girl) after you've already gone through all the trouble. I'm effectively at UNC's mercy in that regard, but, even with that risk, it's that or dying, so obviously...
(2) I can't pay UNC for the transplant while living in New York; my only health coverage is NYS Medicaid, which they don't accept.
(3) I could *potentially* pay them if I obtained North Carolina Medicaid, which would require me to move. After checking with the Social Security Administration, I would qualify for it with a simple address change.
(4) Thus, I found out whether they'd list me--assuming the financial issues checked out--and they said yes. I had gobs of tests done, and Becky Cicale emailed me that they were ready to put me on the list, and to "pack my bags."
(5) So, I'm currently in the process of moving.
Hope that answers your confusion, Joanne. In a nutshell, I *can't* be listed before I move. That was one of the main things weighing on my mind when I was thinking whether to proceed with it at all, as the chance always remains that they'll say "whoops, sorry, we won't do it after all" (like Duke University did to that poor girl) after you've already gone through all the trouble. I'm effectively at UNC's mercy in that regard, but, even with that risk, it's that or dying, so obviously...
The allocation system that has been in place for years is TIME ON THE LIST.. .and of course your blood type and size.
Now it will go by how long you can live with present lungs, what is the expected benefit from new lungs if you should get them, and your present health.
Joanne Schum
luckylungsforjo@aol.com
Now it will go by how long you can live with present lungs, what is the expected benefit from new lungs if you should get them, and your present health.
Joanne Schum
luckylungsforjo@aol.com
Emily65Roses
New member
Ahhhhh. Thanks for the answer. <img src="i/expressions/rose.gif" border="0">
LindseyRose
Member
I apologize if this has been asked before...
Is there any evidence of better results from using a live donor as opposed to a cadaver? or vice versa? I would think that you would have less chance of rejection if you used lungs from a family member that has a similar body makeup.
Is there any evidence of better results from using a live donor as opposed to a cadaver? or vice versa? I would think that you would have less chance of rejection if you used lungs from a family member that has a similar body makeup.
supermanfan
New member
May 11th will be my eight year post transplant anniversary <img src="i/expressions/face-icon-small-happy.gif" border="0">
Let me know if any of you have questions
Let me know if any of you have questions