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I've been aware for years that my diet is garbage. In recent years I've been suffering from a lot of respiratory inflammation and GI issues, and I'm thinking it's time to get serious about improving my diet. My problem is, the dietary recommendations for inflammation/GERD/constipation often...

Does anyone here know about Medicare plans in NJ? I become eligible in January and have been tearing my hair out trying to figure out what to get. I live in south Jersey so my clinic is in Philadelphia, which adds another complication. Currently trying to decide whether I'm better off with the...

I've always been one of the "lucky ones" with mild CF. Of course things have declined over the years, but last year I was still doing well for a 36 year old with CF. In 2014 my FEV1 was hanging out in the low 70s. Then I caught a bad bug September 2014, and within 3 days I went from being...

A couple months ago I tried to refill my Mucomyst perscription and was told by the CF pharmacy that it was on backorder. I still had some overstock and my doctor thought there would be more available by the time I ran out. I finally ran out about 3 weeks ago, and guess what? Still can't get it...

A friend of mine knows a couple living in South Africa whose 6 month old was just diagnosed with CF. Do any of you know how the care in South Africa compares to the US or other countries? I'm happy to advise them based on my own 29 yrs of experience with CF, but I know things can be very...

All the talk about the oregano oil has been very interesting and I'm looking into it... Just wondering if anyone knows if there's a difference in effectiveness/potency/etc. between something like oreganol which is actually in liquid oil form, versus something like oregamax which looks more like...

A friend of mine recently asked me for info on CF because she noticed her baby tasted salty. She said he seems pefectly healthy, and though he has frequent bowel movements and goes through an abnormal amount of diapers a day he has no problem gaining weight and is even kinda chubby. This is her...

Hey guys, I know some of you have mentioned having Mic-keys so I figured I'd ask around here. For a couple years I've had Bard buttons for my feeding tube and have been pretty happy with them, but when I needed my last one changed I had to go to a different facility due to insurance issues. All...

Been lurking on and off for a while, figured I'd try posting... Just venting... I HATE coughing up blood, it's the one time I feel really frighteningly SICK. I mean, coughing, nebulizers, medication, a lot of people do those things with far less serious illnesses than CF, but suddenly...