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  1. L

    Sterilizing with an Avent steam sterilizer

    I found this article in the Journal of Cystic Fibrosis. Made me feel better about using the steam sterilizer.... Lisa, mom to 13 year old with CFBaby bottle steam sterilizers disinfect home nebulizers inoculated with bacterial respiratory pathogens Dana Towle Affiliations Clinical...
  2. L

    S1235R

    My son has this mutation. His other one is W1282X. I tried to research it a few years ago. It seems that it can be a more mild mutation. But I also read that it can depend on what mutation it is paired with. In my son's case he seem to have more classic symptom. He is 7 and is pancreatic...
  3. L

    S1235R

    My son has this mutation. His other one is W1282X. I tried to research it a few years ago. It seems that it can be a more mild mutation. But I also read that it can depend on what mutation it is paired with. In my son's case he seem to have more classic symptom. He is 7 and is pancreatic...
  4. L

    S1235R

    My son has this mutation. His other one is W1282X. I tried to research it a few years ago. It seems that it can be a more mild mutation. But I also read that it can depend on what mutation it is paired with. In my son's case he seem to have more classic symptom. He is 7 and is pancreatic...
  5. L

    S1235R

    My son has this mutation. His other one is W1282X. I tried to research it a few years ago. It seems that it can be a more mild mutation. But I also read that it can depend on what mutation it is paired with. In my son's case he seem to have more classic symptom. He is 7 and is pancreatic...
  6. L

    S1235R

    My son has this mutation. His other one is W1282X. I tried to research it a few years ago. It seems that it can be a more mild mutation. But I also read that it can depend on what mutation it is paired with. In my son's case he seem to have more classic symptom. He is 7 and is pancreatic...
  7. L

    Just found out Pregnant

    I have 3 children. Only my middle one has CF. When I found out I was pregnant with the 3rd I had CVS done at 10 weeks. I knew by 13 weeks the baby didn't have CF and was not even a carrier. I definitely understand the stress you are feeling right now! Best Wishes, Lisa, mom 3 kids (11 yrs...
  8. L

    Just found out Pregnant

    I have 3 children. Only my middle one has CF. When I found out I was pregnant with the 3rd I had CVS done at 10 weeks. I knew by 13 weeks the baby didn't have CF and was not even a carrier. I definitely understand the stress you are feeling right now! Best Wishes, Lisa, mom 3 kids (11 yrs...
  9. L

    Just found out Pregnant

    I have 3 children. Only my middle one has CF. When I found out I was pregnant with the 3rd I had CVS done at 10 weeks. I knew by 13 weeks the baby didn't have CF and was not even a carrier. I definitely understand the stress you are feeling right now! Best Wishes, Lisa, mom 3 kids (11 yrs...
  10. L

    Just found out Pregnant

    I have 3 children. Only my middle one has CF. When I found out I was pregnant with the 3rd I had CVS done at 10 weeks. I knew by 13 weeks the baby didn't have CF and was not even a carrier. I definitely understand the stress you are feeling right now! Best Wishes, Lisa, mom 3 kids (11 yrs...
  11. L

    Just found out Pregnant

    I have 3 children. Only my middle one has CF. When I found out I was pregnant with the 3rd I had CVS done at 10 weeks. I knew by 13 weeks the baby didn't have CF and was not even a carrier. I definitely understand the stress you are feeling right now! Best Wishes, Lisa, mom 3 kids (11 yrs...
  12. L

    CFRD W/O fasting hyperglycemia

    The past two years my kiddo had the test done without fasting and I remember the results being very similiar (I panicked too.) This year we did it WITH fasting and the results were in the normal range. Good idea to check for a bladder infection. Also is she just drinking more?? Take Care...
  13. L

    CFRD W/O fasting hyperglycemia

    The past two years my kiddo had the test done without fasting and I remember the results being very similiar (I panicked too.) This year we did it WITH fasting and the results were in the normal range. Good idea to check for a bladder infection. Also is she just drinking more?? Take Care...
  14. L

    CFRD W/O fasting hyperglycemia

    The past two years my kiddo had the test done without fasting and I remember the results being very similiar (I panicked too.) This year we did it WITH fasting and the results were in the normal range. Good idea to check for a bladder infection. Also is she just drinking more?? Take Care...
  15. L

    CFRD W/O fasting hyperglycemia

    The past two years my kiddo had the test done without fasting and I remember the results being very similiar (I panicked too.) This year we did it WITH fasting and the results were in the normal range. Good idea to check for a bladder infection. Also is she just drinking more?? Take Care...
  16. L

    CFRD W/O fasting hyperglycemia

    The past two years my kiddo had the test done without fasting and I remember the results being very similiar (I panicked too.) This year we did it WITH fasting and the results were in the normal range. Good idea to check for a bladder infection. Also is she just drinking more?? Take Care...
  17. L

    CFRD W/O fasting hyperglycemia

    The past two years my kiddo had the test done without fasting and I remember the results being very similiar (I panicked too.) This year we did it WITH fasting and the results were in the normal range. Good idea to check for a bladder infection. Also is she just drinking more?? Take Care...
  18. L

    waiting for genetic test results

    The test at Quest is almost the same as at Ambry. As long as the did the "CF Complete Test." If they are testing for over 1000 mutations it sounds like the right one. We have had testing at both and the results were the same. Good Luck! Lisa, mom to 3 kiddos, 1 with CF
  19. L

    waiting for genetic test results

    The test at Quest is almost the same as at Ambry. As long as the did the "CF Complete Test." If they are testing for over 1000 mutations it sounds like the right one. We have had testing at both and the results were the same. Good Luck! Lisa, mom to 3 kiddos, 1 with CF
  20. L

    waiting for genetic test results

    The test at Quest is almost the same as at Ambry. As long as the did the "CF Complete Test." If they are testing for over 1000 mutations it sounds like the right one. We have had testing at both and the results were the same. Good Luck! Lisa, mom to 3 kiddos, 1 with CF
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