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  1. C

    GOTU KOLA

    Cyril- I thought it was not just the vit K in gotu kola but mostly whatever in it helps things like venous insufficiency (works as a vessel strengthener) that did the trick. I am trying to avoid embolization at all possible costs, which I wrote above. I am going to try anything before getting...
  2. C

    GOTU KOLA

    Jacobus - thanks for the reply! I'm glad you had some success with it. Were your doctors concerned at all about it effecting your liver? I have read some things that because it is processed through the liver, it should be used with caution, but my dr. just agreed that we would treat it like...
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    GOTU KOLA

    Hi, thanks - yes, i am already on lots of vitamin K. Usually it helps as well but this time is different so looking at other options. Hopefully someone else out there remembers this post from last year!! thanks I bought the gotu kola today but havent started taking it yet.
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    GOTU KOLA

    I read a post from last summer about someone using this for hemoptysis with great success. Anyone else try it since? I am at my wits end with 2 weeks of minimal but continuous hemoptysis. Want to avoid BAE at any cost so I think I'm going to try this. Really curious if anyone out there has...
  5. C

    fungal infection - treatment?

    no labs yet, they are going to do it on monday. wish we had known when i had them drawn today at the hospital. ugh, i was on prednisone once when i was little and my face got so fat.
  6. C

    fungal infection - treatment?

    no labs yet, they are going to do it on monday. wish we had known when i had them drawn today at the hospital. ugh, i was on prednisone once when i was little and my face got so fat.
  7. C

    Anyone on Fortaz

    I've been using Fortaz for almost 6 years continuously. Which is kind of weird but i love the stuff so much, and it changed my LIFE, that i dont want to stop it, ever. Before it, I couldnt even feel like I could cough stuff up easily. It would take 2 hours in the morning of coughing so hard to...
  8. C

    Anyone on Fortaz

    I've been using Fortaz for almost 6 years continuously. Which is kind of weird but i love the stuff so much, and it changed my LIFE, that i dont want to stop it, ever. Before it, I couldnt even feel like I could cough stuff up easily. It would take 2 hours in the morning of coughing so hard to...
  9. C

    fungal infection - treatment?

    I am supposed to start a course of antibiotics on monday for just general more coughing, slight feeling of an exacerbation, and the fact that i am going on a long vacation May 24 and want to feel good before going. my dr just called though and said based on my x ray the radiologist pointed out...
  10. C

    fungal infection - treatment?

    I am supposed to start a course of antibiotics on monday for just general more coughing, slight feeling of an exacerbation, and the fact that i am going on a long vacation May 24 and want to feel good before going. my dr just called though and said based on my x ray the radiologist pointed out...
  11. C

    Boiling nebs?

    i just boil water for 10 minutes. sometimes more if i forget they are in there. ive been doing this forever. anyone else use just plain tap water?
  12. C

    Boiling nebs?

    i just boil water for 10 minutes. sometimes more if i forget they are in there. ive been doing this forever. anyone else use just plain tap water?
  13. C

    Portable Oxygen Concentrators - which kind do you have?

    Hi - I travel a lot and am looking to purchase a new POC. I have the original Inogen One but it is breaking and I think I want to purchase a newer model rather than have it fixed. I was wondering if anyone out there had other brands and what their experiences are. Much appreciated! Caitlin
  14. C

    Portable Oxygen Concentrators - which kind do you have?

    Hi - I travel a lot and am looking to purchase a new POC. I have the original Inogen One but it is breaking and I think I want to purchase a newer model rather than have it fixed. I was wondering if anyone out there had other brands and what their experiences are. Much appreciated! Caitlin
  15. C

    Out of state transplants because of b. cepacia?

    Hi everyone, I was wondering if any of you, pre or post tx, have had to deal with going out of your own hospital or nearby hospital for transplant (or tx evaluation) because you have b. cepacia, cenocepacia. The decision by hospitals to stop transplanting cepacia patients has effected me...
  16. C

    Altitude and CF, low PFT

    Thanks for all the responses! I also did a search on an old thread and found some info there. My doctor said 1900 feet wasnt high enough to put me in any kind of danger and that I might just be uncomfortable or unable to keep up...which I already am half the time. Most of the people I'm...
  17. C

    Altitude and CF, low PFT

    Thanks for all the responses! I also did a search on an old thread and found some info there. My doctor said 1900 feet wasnt high enough to put me in any kind of danger and that I might just be uncomfortable or unable to keep up...which I already am half the time. Most of the people I'm...
  18. C

    Altitude and CF, low PFT

    Thanks for all the responses! I also did a search on an old thread and found some info there. My doctor said 1900 feet wasnt high enough to put me in any kind of danger and that I might just be uncomfortable or unable to keep up...which I already am half the time. Most of the people I'm...
  19. C

    Altitude and CF, low PFT

    Thanks for all the responses! I also did a search on an old thread and found some info there. My doctor said 1900 feet wasnt high enough to put me in any kind of danger and that I might just be uncomfortable or unable to keep up...which I already am half the time. Most of the people I'm...
  20. C

    Altitude and CF, low PFT

    Thanks for all the responses! I also did a search on an old thread and found some info there. <br /> <br />My doctor said 1900 feet wasnt high enough to put me in any kind of danger and that I might just be uncomfortable or unable to keep up...which I already am half the time. Most of the...
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