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I have had several PICC lines get stuck too. Usually hot packs up my arm and chest for about 1/2 hr before pulling it out helps dilate the veins enough for it to slip out. If not, and it does get stuck they call the IV nurses. They have taught me this trick where they tell you to open and...

Jennifer, I had a RUL lobectomy in march. It definately was not a fun experience but I think in the long run it was the best decision for my health. If you would like to email me I can try to answer any questions or just tell you my experience. Jaime

that last post was me. sorry I didnt sign in. 8)

Hi!! Its Jaime here. Yes, Im a girl. 8) also known as the "ultrasound tech from Boston"!! I had my surgery and had alot of complications. I just recently posted an update in the adults category--"I had my surgery" if you want to read what went on. Thanks for your concern, sorry if I...

Im 27 years old, had my surgery in Boston at Childrens Hospital.

Thanks everyone! Im slowly getting better everyday. I have more strength and energy everyday and chest PT is getting less painful for me. I appreciate all of your well wishes.

Hi Mary, I work 32 hours a week. Right now Im out of work until June because I just had surgery but I hope to get back to my regular schedule after my recovery. I find that working 32 hours is perfect for me because I have a day during the week to really focus on resting and taking it easy...

Hi Everyone, I had my thoracotomy/lobectomy on march 30th. It didnt go as well as planned and I had to have a second emergency surgery a few hours later. The initial surgery went well and the doctors were very happy with everything. They said my right upper lobe was absolutely disgusting...

Thats interesting and something I have never thought of. I have always just taken my enzymes at the begining of my meals and everything seems to work fine. I have noticed that if I start eating and forget to take my enzymes, about 10-15 min into the meal I get terrible stabbing stomach pains.

I was diagnosed two days after birth after surgical repair of meconium ileus.

Tapestry, Growing up with CF I was in daycare from the time I was about 6 years old probably until I was about 12. Because my mother was on her own, she really didnt have any choice but to put my brother and I into daycare afterschool. I have to say I dont think it had a negative impact on my...

I take 4 Pancrease MT10 with meals. I dont remember what I used to take when I was a child/baby, but I do know I have taken enzymes since birth.

I love the movie "Some Kind of Wonderful" and "Girls Just Wanna Have Fun"---good 80's flicks. Oh, and "The Princess Bride", I could watch that a million times. Also, for some very odd reason, EVERY TIME the movie "The Sound of Music" is on I absolutely have to watch it--I just love it, its...

Hi Amy, First of all, congratulations for quitting smoking! Good job, that will definately help in your breathing being better. Im sure now that you have a diagnosis you will be treated properly and hopefully start feeling better very soon. Treatment is really different for everyone, as...

The thing I hate the most and is the hardest is probably just coughing all the time and the looks I get from strangers. They look at me like they are thinking: "How could you possibly be out in public with a horrible cough like that??? You are going to infect us all!!!" That drives me nuts...

I agree, Im not afraid of death but its terrible to think of the pain and suffering of those who love me and would be left behind. To me, that is the worst thought. I see the way my family and loved ones hurt so much when Im sick and in the hospital and I wish there was a way I could take...

Thanks everyone for your well wishes! Sara, Im not having VATS, Im having a thoracotomy, but i would still like to hear about your procedure---email me (jmaki@partners.org)

Hi Everyone, I just wanted to let you all know that I'm having a lobectomy on wednesday march 30th. The surgeon will be removing my right upper lobe due to chronic infection and abscess that never ever heals or gets better. Im not too worried about the actual procedure--just more worried...

Hi Haley, I have been to the Dominican Republic twice. The first time a few years ago I went to the jungle part of the country and lived in a house in the mountains for a week with a friend of mine who was temporarily living there. It was absolutely beautiful! What an amazing country and a...

ok, well my email is jmaki@partners.org if you want to chat. Im in the hospital too!