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  1. J

    I had my surgery

    Hi Everyone, I had my thoracotomy/lobectomy on march 30th. It didnt go as well as planned and I had to have a second emergency surgery a few hours later. The initial surgery went well and the doctors were very happy with everything. They said my right upper lobe was absolutely disgusting...
  2. J

    I'm having surgery

    Hi Everyone, I just wanted to let you all know that I'm having a lobectomy on wednesday march 30th. The surgeon will be removing my right upper lobe due to chronic infection and abscess that never ever heals or gets better. Im not too worried about the actual procedure--just more worried...
  3. J

    CF scholarship

    Hi Everyone, I just came across this in a CF newsletter I recieved. I thought maybe the parents and/or highschool kids would like to know that there is a website for scholarship for kids with CF. I remember when I went to college my social worker from the hospital was very helpful in finding...
  4. J

    allie1 (Amy)

    Hi--- I was wondering Amy if you could email me again, I seem to have lost your adress and I want to write to you! Thanks.
  5. J

    Lobectomy

    Hi everyone, Im in the hospital getting another round of IV meds now. The past few times I have been sick my docs have been tossing around the idea of me having a lobectomy. Some of the docs think that removing this particular lobe of my lung that is more diseased would be of benefit to me...
  6. J

    Light therapy

    I was wondering if anyone had heard of or tried color light therapy? I have heard some stories about patients being cured of cancer and other ailments thru color light therapy. (It sounds kind of crazy to me) I know CF is an entirely different thing and we can't be "cured" but I didn't know...
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