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I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...

I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...

I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...

I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...

I haven't been on in quite a while but I needed some support. Our 12 week old daughter Lilly has been hospitalized because of an exacerbation of her CF. WE're at Children's in Minneapolis MN. They found today among a couple others Pseudomonas Aeruginosa in her lungs. She also has ecoli, a...

Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?

Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?

Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?

Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?

Okay, but then how do you keep yourselves safe and protected when going to CF clinics? I know you can't put yourself or your children in a plastic bubble, but what kind of measures and precautions do the clinics take to control the environment; and what do you yourselves do to limit contamination?

Why can't CF ers meet other CF ers?

Why can't CF ers meet other CF ers?

Why can't CF ers meet other CF ers?

Why can't CF ers meet other CF ers?

Why can't CF ers meet other CF ers?

Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...

Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...

Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...

Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...

Okay so I posted yesterday about my newborn baby girl being diagnosed with cf and her mutations are DeltaF508 and R117H. I understand that overall no one can be sure about how severe her case will be based on genes alone, but everywhere I have read the R117H mutation has been said to be less...