Search results
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Newborn diagnosed with CF
Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura- nlwlrandall
- Post #26
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura- nlwlrandall
- Post #27
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura- nlwlrandall
- Post #28
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura- nlwlrandall
- Post #29
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
Thank you so much for the love and support. It's barely been 24 hours since we found out so it hasnt quite sunk in yet. I guess I just don't know what to think. I want my children to well outlive me. I'm just wishing for the best on monday at the appt. Thanks again, Laura- nlwlrandall
- Post #30
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...- nlwlrandall
- Thread
- Replies: 34
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...- nlwlrandall
- Post #2
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...- nlwlrandall
- Post #3
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...- nlwlrandall
- Post #4
- Forum: Newly Diagnosed
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N
Newborn diagnosed with CF
My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or...- nlwlrandall
- Post #5
- Forum: Newly Diagnosed