nlwlrandall
New member
My newborn baby girl has been diagnosed with cf. It was found in her newborn screening. We go to the children's hospital on Monday to do a sweat test, meet with ENT and see a pulmonary specialist. Her mutations are <b>DeltaF508</b> and <b>R117H</b>. Soes anyone have these mutations or combination of mutations? I'd like to know how severe her case may be and to hear from someone in the very same boat. I am so broken hearted. One never plans on having babies only to outlive them. She's beautiful and perfect in every way.
Thanks for listening.
Laura
Mom of William 2 1/2 no cf and Lillian 3 weeks with cf
Thanks for listening.
Laura
Mom of William 2 1/2 no cf and Lillian 3 weeks with cf