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Is your son on maintenance zithromax? Thus far, there is not a straing of step resistent to zithro that I'm aware of. I've never been found of having to put Micah on maintenance zithro but the one thing it has done is prevent him from contracting strep. Unfortunately, certain infections such...

Is your son on maintenance zithromax? Thus far, there is not a straing of step resistent to zithro that I'm aware of. I've never been found of having to put Micah on maintenance zithro but the one thing it has done is prevent him from contracting strep. Unfortunately, certain infections such...

LA Children's is UNDER UCLA. It's part of the same hospital system and YES they are INFACT an APPROVED CF CENTER. Try checking your facts better before attacking yet another new family, Printer.

LA Children's is UNDER UCLA. It's part of the same hospital system and YES they are INFACT an APPROVED CF CENTER. Try checking your facts better before attacking yet another new family, Printer.

I completey disagree with the concept of simply getting out of the way of the docots in treating a child's CF condition. That might hav been status quo decades ago with any medical conditions. However, as parents today, we learn that we need to be proactive, educated and partner with our...

I completey disagree with the concept of simply getting out of the way of the docots in treating a child's CF condition. That might hav been status quo decades ago with any medical conditions. However, as parents today, we learn that we need to be proactive, educated and partner with our...

I grab pliers when I remember to, but with eight kids my pliers always grow feet. Without fail, I always figure out I have a cut when I pull out the hand sanitzer or wash my hands, or other simple procedure right after setting up Cayston that makes me jump through the roof from the searing pain...

I grab pliers when I remember to, but with eight kids my pliers always grow feet. Without fail, I always figure out I have a cut when I pull out the hand sanitzer or wash my hands, or other simple procedure right after setting up Cayston that makes me jump through the roof from the searing pain...

Socialized medicine is a term used as a scare tactic to get people to shy away from a mandate that all citizens should have healthcare coverage. Firstly, we already HAVE socialized medicine in this country, and in the two forms we have it almost ALL patients on it are well satistified with it...

I cannot stress strongly enouhg how vital having an actual Heptalogist on your team with liver complications is. Micah's liver didn't show significant issues until the last two years. Even now, if you go by his liver enzymes and strict lab values, his liver should be only marginally impacted...

I cannot stress strongly enouhg how vital having an actual Heptalogist on your team with liver complications is. Micah's liver didn't show significant issues until the last two years. Even now, if you go by his liver enzymes and strict lab values, his liver should be only marginally impacted...

Micah has had 3 bowel resections, as well as his last partial bowel obstruction in 2009. He was on Atigall when he was younger. The obstruction that cost him his illeoccecal valve necessitated that he come off of it. I really don't think you can prepare for what Micah has been through...

Micah has had 3 bowel resections, as well as his last partial bowel obstruction in 2009. He was on Atigall when he was younger. The obstruction that cost him his illeoccecal valve necessitated that he come off of it. I really don't think you can prepare for what Micah has been through...

When they corrected Micah's meconium illeum, they didn't leave enough small bowel for a liver transplant. Thus, he would require a multi-viseral transplant. There were less than half a dozen pediatric multi-viseral transplants done in the US last year. Micah will not qualify when you account...

When they corrected Micah's meconium illeum, they didn't leave enough small bowel for a liver transplant. Thus, he would require a multi-viseral transplant. There were less than half a dozen pediatric multi-viseral transplants done in the US last year. Micah will not qualify when you account...

Normally, I'm not found of prophy anbitiotics per se, especially not ones that would be used for years on end. However, Micah was having lots of inflammation issues that were causing lung exacerbations several years ago. Azithromycin has shown to have strong anti-inflammatory properties...

Normally, I'm not found of prophy anbitiotics per se, especially not ones that would be used for years on end. However, Micah was having lots of inflammation issues that were causing lung exacerbations several years ago. Azithromycin has shown to have strong anti-inflammatory properties...

12% of CFers will experience some form of liver complications directly related to their CF disease process. DDF508s are classic for having signfiicant gut complications, and frequently require TPN has babies for those struggles. TPN is liver toxic and can absolutely cause liver complications...

12% of CFers will experience some form of liver complications directly related to their CF disease process. DDF508s are classic for having signfiicant gut complications, and frequently require TPN has babies for those struggles. TPN is liver toxic and can absolutely cause liver complications...

To be perfectly honest it's been my experience that niether a typical GI *nor* a CF GI is at all equipped to manage liver complications, not even those related to CF. Micah has seen a Heptalogist since he came home. He had only ever seen a CF GI prior to that point, and they completely bungled...