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You may want to repost this over in the adult section. Those guys may have more helpful info. for you! I know I have a three year old with CF so we have not experienced a lot of the things that I am sure many of the older patients with CF have....yet, that is....My son has been hospitalized 2...

You may want to repost this over in the adult section. Those guys may have more helpful info. for you! I know I have a three year old with CF so we have not experienced a lot of the things that I am sure many of the older patients with CF have....yet, that is....My son has been hospitalized 2...

You may want to repost this over in the adult section. Those guys may have more helpful info. for you! I know I have a three year old with CF so we have not experienced a lot of the things that I am sure many of the older patients with CF have....yet, that is....My son has been hospitalized 2...

Liza--did you call them because sometimes they will honor the discounts even if you have already booked your trip. We did that once and they did give us the discount. But it was a few years ago--right after 9/11 so no one was traveling and they may have been more desperate than they are now! We...

Liza--did you call them because sometimes they will honor the discounts even if you have already booked your trip. We did that once and they did give us the discount. But it was a few years ago--right after 9/11 so no one was traveling and they may have been more desperate than they are now! We...

Liza--did you call them because sometimes they will honor the discounts even if you have already booked your trip. We did that once and they did give us the discount. But it was a few years ago--right after 9/11 so no one was traveling and they may have been more desperate than they are now! <br...

Ours did the same thing! I thought my OCD was just kicking in too strong because that was bugging me so much! Glad I'm not the only one. I think I will give them a call! Thanks for posting!

Ours did the same thing! I thought my OCD was just kicking in too strong because that was bugging me so much! Glad I'm not the only one. I think I will give them a call! Thanks for posting!

Ours did the same thing! I thought my OCD was just kicking in too strong because that was bugging me so much! Glad I'm not the only one. I think I will give them a call! Thanks for posting!

Just wanted to post a quick repsonse for any future "seekers" of GH info. We actually started working with a new dietician who helped us with enzyme dosing and we changed his enzymes for his overnight feeds (kinda had to when the dc'd viokase powder). We increased his night time tube feeds...

Just wanted to post a quick repsonse for any future "seekers" of GH info. We actually started working with a new dietician who helped us with enzyme dosing and we changed his enzymes for his overnight feeds (kinda had to when the dc'd viokase powder). We increased his night time tube feeds...

Just wanted to post a quick repsonse for any future "seekers" of GH info. We actually started working with a new dietician who helped us with enzyme dosing and we changed his enzymes for his overnight feeds (kinda had to when the dc'd viokase powder). We increased his night time tube feeds...

We use creon and as Harriet said, we could never manage to get it to go through the tube. So we give it before he goes on the pump and then when he wakes up and so far so good. We do regular pediasure. Luke's rate is 115 now. I think we started ou at 60 and have gradually bumped it up. He gets...

We use creon and as Harriet said, we could never manage to get it to go through the tube. So we give it before he goes on the pump and then when he wakes up and so far so good. We do regular pediasure. Luke's rate is 115 now. I think we started ou at 60 and have gradually bumped it up. He gets...

We use creon and as Harriet said, we could never manage to get it to go through the tube. So we give it before he goes on the pump and then when he wakes up and so far so good. We do regular pediasure. Luke's rate is 115 now. I think we started ou at 60 and have gradually bumped it up. He gets...

We use Creon 6 enzymes. We have always used them and they have worked really well for Luke. Just thought I would mention that in case you are going to have to switch to another brand of enzyme. Luke also got his vest as soon as he measured the appropriate chest circumference. He was about 15...

We use Creon 6 enzymes. We have always used them and they have worked really well for Luke. Just thought I would mention that in case you are going to have to switch to another brand of enzyme. Luke also got his vest as soon as he measured the appropriate chest circumference. He was about 15...

We use Creon 6 enzymes. We have always used them and they have worked really well for Luke. Just thought I would mention that in case you are going to have to switch to another brand of enzyme. <br />Luke also got his vest as soon as he measured the appropriate chest circumference. He was about...

We are having this same issue. Luke has just been switched from viokase powder to doing his creon enzymes before he starts on the pump and then again in the middle of the night. We are having a really hard time getting them to go through the mickey. They are telling us at clinic not to use one...

We are having this same issue. Luke has just been switched from viokase powder to doing his creon enzymes before he starts on the pump and then again in the middle of the night. We are having a really hard time getting them to go through the mickey. They are telling us at clinic not to use one...