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I don't post but I do lurk a lot. Luke gets all his CF care at UNMC but when he had a flare up last Dec. he spent a week in Childrens. I spent the entire week at the hospital with him. Only one parent could spend the night with him. I slept in his room and everything. Sleeping wasn't the...

I don't post but I do lurk a lot. Luke gets all his CF care at UNMC but when he had a flare up last Dec. he spent a week in Childrens. I spent the entire week at the hospital with him. Only one parent could spend the night with him. I slept in his room and everything. Sleeping wasn't the...

I don't post but I do lurk a lot. Luke gets all his CF care at UNMC but when he had a flare up last Dec. he spent a week in Childrens. I spent the entire week at the hospital with him. Only one parent could spend the night with him. I slept in his room and everything. Sleeping wasn't the...

I don't post but I do lurk a lot. Luke gets all his CF care at UNMC but when he had a flare up last Dec. he spent a week in Childrens. I spent the entire week at the hospital with him. Only one parent could spend the night with him. I slept in his room and everything. Sleeping wasn't the...

I don't post but I do lurk a lot. <br /> <br />Luke gets all his CF care at UNMC but when he had a flare up last Dec. he spent a week in Childrens. <br />I spent the entire week at the hospital with him. Only one parent could spend the night with him. I slept in his room and everything...

Wow-that was quick, thanks ladies. He has Delta F508 and R553X. -Jen

Wow-that was quick, thanks ladies. He has Delta F508 and R553X. -Jen

Wow-that was quick, thanks ladies. He has Delta F508 and R553X. -Jen

Wow-that was quick, thanks ladies. He has Delta F508 and R553X. -Jen

Wow-that was quick, thanks ladies. He has Delta F508 and R553X. -Jen

I've been lurking here for a couple of weeks now. My six week old son has CF. He was diagnosed through newborn screening and genetic testing. As you all know it was a huge blow when we found out, but things are getting better. I love coming to this site and reading what everyone has to say...

I've been lurking here for a couple of weeks now. My six week old son has CF. He was diagnosed through newborn screening and genetic testing. As you all know it was a huge blow when we found out, but things are getting better. I love coming to this site and reading what everyone has to say...

I've been lurking here for a couple of weeks now. My six week old son has CF. He was diagnosed through newborn screening and genetic testing. As you all know it was a huge blow when we found out, but things are getting better. I love coming to this site and reading what everyone has to say...

I've been lurking here for a couple of weeks now. My six week old son has CF. He was diagnosed through newborn screening and genetic testing. As you all know it was a huge blow when we found out, but things are getting better. I love coming to this site and reading what everyone has to say...

I've been lurking here for a couple of weeks now. My six week old son has CF. He was diagnosed through newborn screening and genetic testing. As you all know it was a huge blow when we found out, but things are getting better. I love coming to this site and reading what everyone has to say...