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  1. J

    Post Transplant and Drinking Alcohol

    I'm curious to see how many people drink alcohol after transplant. Do you drink once in a blue moon, once every month, etc. I know each hospital has different suggestions on this topic, but I have noticed that it seems drinking in moderation every once in awhile is acceptable. I rarely drink and...
  2. J

    Careers After Transplant

    I saw this in the adult section and was curious what everyone is doing career wise after being transplanted? are you on disability? i am a medical documentation designer..... its not a bad job but not what i want to be doin. i want to be a nurse but work in home health or dermatologist office...
  3. J

    Disabilty after transplant

    anyone on disability after getting their lung transplant. if you are how are your pft's. im debating on going back b/c ive been hospitalized 3 times already this year and i dont have any paid time off anymore. it would just be easier to go back on it and find a part time job. does anyone have...
  4. J

    Who has a myspace?!?

    www.myspace.com/6pacjojo
  5. J

    How many people on here have had a lung transplant

    Hey EVERYONE I havent been on here in a very long time..... my life is so busy now. Just was curious to see how many people on here have had a transplant or are on the waiting list for one right now. would like to hear your stories and of course i will share mine <img...
  6. J

    mixing ampho B for inhalation

    so i come home thinking that i would have instructions to mix this compund for my new lungs. guess what i thought wrong..... no instructions. i called the nurse on charge but i dunno if she gave me the dosage right b/c i tried it and it was so harsh on my throat i couldn't finish it all!!! i...
  7. J

    dermatitis......

    for the past 2 months almost i have been experiencing spells of the itches!!! it's weird b/c i have never been allergic to anything so i dont understand what's going on and my doctors just said it was a form of dermatitis but didnt really give me any solutions except me taking benadryl. it...
  8. J

    ANYONE IN TEXAS?!?!?!?

    I'M TRYING TO FIND PPL ON THIS WEBSITE THAT ARE FROM TEXAS.....
  9. J

    TATTOO QUESTION NEED SUGGESTIONS....

    i am getting a tattoo in a couple of weeks after i get off iv's. im placing it in b/t my shoulder blades and it will prolly be as big as a piece of paper. i have the picture but im still debating on what it will say around it so i need suggestions please. the tattoo will be a stone cross w/ some...
  10. J

    IS THERE ANYONE ELSE?!?!?!?!?!?!?

    Im just wondering if anyone else is not on oxygen and is below 30% PFT's? I was at 17% last month and i usually hover b/t 17-21%. Ive been this way for a while now at least 2-3 yrs. I have to wear it at night at 2 liters and I just did a pulse oximetry and it was good!I use 4 liters when i...
  11. J

    inhaled l-arginine

    [No message]
  12. J

    bleeding!!!

    [No message]
  13. J

    amikacin

    interesting article that I found on the gsh forum about mucoid pseudomonas.
  14. J

    cipro and bactrum

    Just wondering if anyone has been on bactrum and cipro at the same time. My doc gave it to me to take for 21 days b/c I am having bleeding issues. I don't think it is doing anything. I take both 2x's a day and they are 750mg each. I have been on it for 2 weeks already
  15. J

    Lung Transplant Testing

    Was wondering how many test you need to do before you are put on the list? I am going to have to do this soon once the insurance part is taken care of and just wondering what to expect. Is some of the tests difficult?Exhausting on the body?
  16. J

    glyconutrient health

    I was reading a article about a person with cf and these sugars and thought it was interesting. It shows to have helped numerous people with cf (did a search for it). If interested in it here is one website http://ambrotose-glycoexpert.blogspot.com/2004/11/glyconutrients-cystic-fibrosis-success.html
  17. J

    MRSA

    Just wondering who else has mrsa on this forum b/c I do!!!
  18. J

    Minneapolis clinic

    I was on another support group forum for gsh and cf and was wondering do any of you go to the minneapolis cf clinic? Do you use pulmozyme or does the doctor prescribe inhaled nac? On the other website it had stated thatso that's why I am asking
  19. J

    Bodybuilding with CF

    I was looking for some bodybuilding tips on the web and stumbled upon this story. It's pretty amazing!!http://www.bodybuilding.com/fun/cystic.htm
  20. J

    GSH

    Is there anyone that is using glutathione from theranaturals? I have used it for a couple of months but have decided to try liposomal glutathione b/c it gets into the system better. Just wondering if anyone uses these products. ***If you are waiting for a transplant of any sort it is highly...
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