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I have always been very open about my CF at work, but recently I am really wondering if it is really that good of an idea. Who are you open with at work? Why do you tell them? Do you think they understand? Do you tell your boss? HR? Your coworkers? If you don't tell your coworkers, what do...

There are so many questions out there about CFRD, I thought I would share a file that I found super helpful. It is chock full of info, but I found that it described CFRD simply. I wish I could have been there when this was presented! Somethings I found interesting: Why CFRD is not Type 1 or...

I am wondering for those on disability, what made you realize that it was time to do it? I have been sick more often than not this past year, but my PFTs are right on the borderline with the disability guidelines (I think). Any advice?

Help! I don't know what to do. After several appeals and 6 months later, my insurance company approved a Minimed Insulin Pump AND a continuous glucose monitor. I got the pump, but the medical supply was told that the CGM will NOT be paid for by insurance even though it was approved and deemed...

I am looking to relocate sometime in the future and CA has my eye because of GHPP. I can't find much info on the web about it, does anyone know online where I can get more detailed info (aside from the main, vague govt site)? I am really curious if supplies for an insulin pump would be covered...

I am really worried about my mom (carrier of DF508 mutation). She is recovering from surgery, spiked a fever and her o2 levels dropped. Turns out, totally unrelated to the surgery, she now has a lung infection. What really bothers me is that she, not a smoker, had a collapsed lung last year...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.nytimes.com/2008/05/06/health/research/06dise.html?ex=1367726400&en=dc10c18a516ee4e6&ei=5124&partner=permalink&exprod=permalink">Redefining Disease, Genes and All</a> So cool! Interesting article. They briefly mention CF, and...

Does anyone have an idea as to how much an Electromed Smart Vest costs? I am trying it out right now and I really prefer it over my ancient Hill/Rom. I did a little research on the Smart Vest and I found something that says it works similarly to the latest model of the Hill/Rom vest. I hope...

I am going in for my first sinus surgery at the end of next month. I was wondering if anyone has any helpful advice? Also, for those who have had it, how long did they keep you in the hospital (if at all), and how long were you stuck in bed. I need to figure out how much MORE vacation time...

Ok, usually I am fairly technologically inclined, but for some reason I can't figure out how to easily get to my blog here on CF.com... what's the trick?

Hi all, When ever I get really upset, like heartbroken, the first thing to go is my appetite. I am so mad right now because I worked really hard to put on 11 pounds (thanks to Prednisone) in the past 3 weeks and because of "some wonderful guy" I lost 5 of those pounds in the past two days. I...

I have been on IVs for the past 2 weeks and since then I have been having really low blood pressure. Yesterday it was 80/54. I am on Lisinopril to protect my kidneys (thanks CFRD!). I have been on it for probably 6 months and run around 104/64, which is already low. Anyone experience...

I am considering getting a port. I think I would be more willing to do my IV treatments (and not put them off) if I had one. From those who have a port, where is yours located and is it ever in the way of normal life? How long has your's lasted? Anything I should consider before getting one...

I have an old ThAIRapy Vest I forgot the brand name, but it is the same as the HillRom company now. I am hearing about different vests, Smart Vest, RespirTech Vest... it seems like some people have tried more than one brand. What are some of the differences? I don't think the HillRom vest...

It has been over 10 years since I did IV antibiotics in the hospital, I usually do them 100% at home. But this time I decided I need the extra care and help, at least to get started. I will be going in tomorrow and probably staying through Monday. It has been so long that I have no idea what...

I googled my real name earlier today and found either a mirror of this site, or an archive, over at suburbantherapy.com I am quite disturbed that it had an old post I made in February and below my post it had my full name! I really don't like that. I know I post a public blog, but I have tried...

Hi everyone! I am trying to compile an extensive list of the extraordinary expenses that we with CF (and/or CFRD) incur. For some reason I am having a hard time creating this list. There are the obvious things, like more medications (more co-pays), higher grocery bills, more trips to the...

I was searching this forum for info about cleaning/sterilizing nebulizers. I found posts that linked (links broken) over to the CFF website of how they "endorsed" neb cleaning. I used their search on CFF and came up with nothing. Does the CFF no longer publish this sort of stuff on the web or...

Are normal c-peptide levels possible with full blown CFRD? Or would that be categorized as CF with insulin resistance?

Insurance has denied my doctor's appeal for coverage of an insulin pump and continuous glucose monitor, again. Has anyone had luck getting their "health" insurance to cover a pump? How did you do it? Feeling very hopeless and helpless right now. ~aspen