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I agree with you Victoria. When you don't have a specific diagnosis the only thing you can do is go with what you've got. My daughter, now 18, has been sick all her life. At 12 they decided it was CF based on an article the Pulmonologist read in a journal. Last year he decided to do another...

TheSaltyOne - we had the same experience; they would put her in to get her on IV meds and stable oxygen wise then send us home to do IV meds. The reason was the same - the longer you stay in the hospital the more likely you are to get additional infections. In fact, that happened to us a few...

One of my daughter's complaints is that when she is accessed taking a shower is a real pain. I have only found 1 "cover" product and we have not had great success with it staying in place during a shower. So for her a better product to prevent water getting onto the dressing during showering...

The Salty One - I have lived in Brandon, FL for the last 20 years - my daughter is 17 so I can't speak about the "adult" experience you will have with CF at Tampa General just the pediatrics. At the beginning of last year they changed the way they admitted from having the CF doctor admit her to...

Hannah, My daughter is a junior in high school and turns 17 next week. She also has had a rough year, missed a lot of school due to illness so we have her on the homebound program through our school district this year. She does teleclass's for some classes, works directly with a teacher for a...

My daughter used this during a 10 day hospital stay in February. What a difference it made! She coughed stuff up like she hasn't in years. In the beginning she complained about it hurting but that was because she had never used it before and it hurt if the respiratory tech had the pressure...

We just saw an Otologist last Friday for my 15 year old. She has low level hearing loss in both ears, however, the right is much worse. I expressed to him my concern that the cause was all the "myacin" medications she has been on all her life. His response was that they cause high level...

My daughter had the Ambry Genetics screening done at National Jewish in 2004. Before the test came back the doctors there sent us home with the Vest - told us she definitely had CF based on their 2 week observation of her and sent notes to her doctors here in Florida on how to treat her...

I live outside Tampa - there are several good Pulmonologist's here. How long have you been here? Do you have a dr yet? My daughter is 15

momofmia, My daughter is 15 and has been ill from birth. Her genetic tests came back exactly what your daughters are! We have also had negative sweat tests. She has Bronchiectasis and sinus infections, frequent pneumonia and was just put on Creon (digestive enzymes) last month even though...

momofmia, My daughter is 15 and has been ill from birth. Her genetic tests came back exactly what your daughters are! We have also had negative sweat tests. She has Bronchiectasis and sinus infections, frequent pneumonia and was just put on Creon (digestive enzymes) last month even though...

I have a 15 year old daughter with CF. I have been at this since she was born though we only got a diagnosis a few years ago.

I have a 15 year old daughter with CF. I have been at this since she was born though we only got a diagnosis a few years ago.

If you withdraw funds from your retirement plan prior to 59 1/2 you will incur penalties on the money. Also, when you file your taxes it will be shown on line 15A as an IRA Distribution - which is under the income section. You should definitely call SS to make sure they won't count it.

If you withdraw funds from your retirement plan prior to 59 1/2 you will incur penalties on the money. Also, when you file your taxes it will be shown on line 15A as an IRA Distribution - which is under the income section. You should definitely call SS to make sure they won't count it.

If you withdraw funds from your retirement plan prior to 59 1/2 you will incur penalties on the money. Also, when you file your taxes it will be shown on line 15A as an IRA Distribution - which is under the income section. You should definitely call SS to make sure they won't count it.