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Also, for anyone who's interested, we emailed the company who makes PTC124 asking them how far out they think the drug may be from consumers, and here's their response: PTC124 may have the potential to treat cystic fibrosis (CF) in which a nonsense mutation is the basis for the disease. W1282X...

Also, for anyone who's interested, we emailed the company who makes PTC124 asking them how far out they think the drug may be from consumers, and here's their response: PTC124 may have the potential to treat cystic fibrosis (CF) in which a nonsense mutation is the basis for the disease. W1282X...

Also, for anyone who's interested, we emailed the company who makes PTC124 asking them how far out they think the drug may be from consumers, and here's their response: PTC124 may have the potential to treat cystic fibrosis (CF) in which a nonsense mutation is the basis for the disease. W1282X...

Also, for anyone who's interested, we emailed the company who makes PTC124 asking them how far out they think the drug may be from consumers, and here's their response: PTC124 may have the potential to treat cystic fibrosis (CF) in which a nonsense mutation is the basis for the disease. W1282X...

Also, for anyone who's interested, we emailed the company who makes PTC124 asking them how far out they think the drug may be from consumers, and here's their response: <br /> <br />PTC124 may have the potential to treat cystic fibrosis (CF) in which a nonsense mutation is the basis for the...

We're still here. We have not terminated yet, in fact, we had the appointment today and didn't go. We are hanging in there. I honestly think it is something we can live with, without a doubt, we just have a fear that our kid could be one of those cases that's really severe. Anyone else with...

We're still here. We have not terminated yet, in fact, we had the appointment today and didn't go. We are hanging in there. I honestly think it is something we can live with, without a doubt, we just have a fear that our kid could be one of those cases that's really severe. Anyone else with...

We're still here. We have not terminated yet, in fact, we had the appointment today and didn't go. We are hanging in there. I honestly think it is something we can live with, without a doubt, we just have a fear that our kid could be one of those cases that's really severe. Anyone else with...

We're still here. We have not terminated yet, in fact, we had the appointment today and didn't go. We are hanging in there. I honestly think it is something we can live with, without a doubt, we just have a fear that our kid could be one of those cases that's really severe. Anyone else with...

We're still here. We have not terminated yet, in fact, we had the appointment today and didn't go. We are hanging in there. I honestly think it is something we can live with, without a doubt, we just have a fear that our kid could be one of those cases that's really severe. Anyone else with...

I think the hardest part for us is how to deal with our own child's mortality. I know there are advances everyday, especially PTC124, but it's not on the market yet. Given the fact that there is no cure, and I can't gamble on the fact that one will come later, how do I deal with the fact that...

I think the hardest part for us is how to deal with our own child's mortality. I know there are advances everyday, especially PTC124, but it's not on the market yet. Given the fact that there is no cure, and I can't gamble on the fact that one will come later, how do I deal with the fact that...

I think the hardest part for us is how to deal with our own child's mortality. I know there are advances everyday, especially PTC124, but it's not on the market yet. Given the fact that there is no cure, and I can't gamble on the fact that one will come later, how do I deal with the fact that...

I think the hardest part for us is how to deal with our own child's mortality. I know there are advances everyday, especially PTC124, but it's not on the market yet. Given the fact that there is no cure, and I can't gamble on the fact that one will come later, how do I deal with the fact that...

I think the hardest part for us is how to deal with our own child's mortality. I know there are advances everyday, especially PTC124, but it's not on the market yet. Given the fact that there is no cure, and I can't gamble on the fact that one will come later, how do I deal with the fact that...

Thank you Peanut2008. The jury is still out for us, but I really appreciate your comments. This is such a tough place to be, and my heart goes out to you for having the courage to make and talk about your decision.

Thank you Peanut2008. The jury is still out for us, but I really appreciate your comments. This is such a tough place to be, and my heart goes out to you for having the courage to make and talk about your decision.

Thank you Peanut2008. The jury is still out for us, but I really appreciate your comments. This is such a tough place to be, and my heart goes out to you for having the courage to make and talk about your decision.

Thank you Peanut2008. The jury is still out for us, but I really appreciate your comments. This is such a tough place to be, and my heart goes out to you for having the courage to make and talk about your decision.

Thank you Peanut2008. The jury is still out for us, but I really appreciate your comments. This is such a tough place to be, and my heart goes out to you for having the courage to make and talk about your decision.