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I haven't been on recently to keep in touch with how all my fibros and cysters have been doing but I've actually been quiet busy myself. First thought I might need liver transplant too but turned out just lungs. Then CO2 got so high they were going to have to put me in medically induced coma...

I am a huge Eddie Vedder fan but I just recently heard Pearl Jam's new song "Just Breath". It fits CF, me and my husband, waiting for a transplant, the list could go on. It's like they reached out and wrote a song just for me (or other CFers). It was posted before in the adults forums but I...

I know Lex was waiting on a transplant at Columbia Pres Hospital in NYC. I think he was in hospital. Is anyone in touch with him or heard from him? I'm really hoping he's not posted because he's gotten his new lungs but I am worried.

I'm wondering if anyone has any suggestions for when you're feeling particularly burdensome on your family. I know we must all go through this and some times are worse but how do y'all get through times like this? I'm feeling very guilty for my poor husband. He not only has to deal with my...

We are moving to Florida because the Atlanta Adult CF clinic/hospital is going through some very unpleasant changes (I hate Emory hospital!). Can anyone recommend Gainsville or Jacksonville clinics or hospitals? The hospital CFers are admitted to is almost more important to me than the...

Hello all. I've been a lurker here for about a year but I need to ask if anyone has experienced what I am going thru so I finally signed up. I'm 37 yr old female cfer, 14 yrs married, no children unless you count my dog and cat (I do!), diagnosed at birth with CF. Very mild until 30 yrs old...