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I do not hate you guys. but you guys hate me so I am never comming back to this place. most of you are twisting the info I give and that is abusive to me. I am sick of being misunderstood just becuase I have a different way of communicating. GOOD BYE!

It was a mass... and just awful! I am NEVER going back. I con't even begain to tell you guys how bad it was. Theres this old doctor who has dated info on CF and he likes to tell everyone that (He thinks I don't have CF) So I don't see him anymore. I told the ER doctor that I don't see him as a...

yesterday and today, I have pooped so much and everything I eat is comming thru me. Even water. Even my tube-feeding food. So I am off to the ER in about 3 hours.I packed everything I need. I have an Attp with GI in July but things are not lookig good. Somthing is wrong not sure what. Also my...

Here is the test as seen on paper: Pre-Bronchodilater FVC FEV1 FEF 25-75 FEF Max SVC 4.24 3.96 5.29 6.85 4.08 ---------------------------------------------- SPIROMETRY ----------- Actual Pred. %Pred. FVC (L) 4.24 3.77 112 FEV1 (L)...

I feel like crying. When I look at my body I see CF everywhere. My back is so curved my arms are getting smaller and smaller. I am as white as a gost most of the time. I am on oral everyday and IV's every other 4 weeks. I just feel so sick most of the time. I am sleeping for hours a day. I...

I have a blowel blockage. And when I get them or if I don't poop for 3 to 4 days they want me to do long hospital emamias. I have been shown how to use them. also when I get backed up they want me to put Golylax down my G-tube with my feeding pump so I did that today and I just got done with 3...

I am 20 years old and I have CF. my mom had to take me to the ER allot as a baby becuase I was coughing and full of mucus down in lungs. The doctors would take me alway from my mom and but a tube down to my lungs to clean out the junk. By the time I was 15 I was very sick and needed enzymes...

It seems to me that us CFers seem to have biger chests. Somtimes it's really hard for me to get tops to fit due to this issue. When my mom buys me tops I get sad becuase most just do not fit right. There just so tight and pull all over. My lung doctors have told me that most people with CF do...

I am on Tobi and and azrothmycin everyday. I would like to know if sputum cultures will be normal then if your on meds to help with lung infection. Becuase today I got the results and the lung doctor says that my my sputum cultre was (normal) so would it be normal becuase I am on Tobi and...

I went to RT today and my oxygen droped to 91 as I walked. when is it time to put on oxygen below 91??

Why would someone think that having Cystic Fibrosis is a lucky???? and why would someone say that becuase I get Medacare for my CF that I am lucky.???? Having CF is awful anyone who thinks any of CF is lucky is very ill in the mind. Well this is what a friend said to my mom: Yes, but Sarah is...

Yesterday I had a very low blood suger. I got very sick and needed allot of suger. After that low suger I just don't feel like the same old me. I feel cold sweatie short of breath and just plan sick. I am so sleepy that I have issues just walking. I have somewhat of a cough that just does not...

I went to CF clinic today and in the past before I was on TOBI my lungs where at 50 to 60% now today becuase I been keep up with my lung treatments they where the highest I have ever seen them! FEV1 93% wow I am so shocked! I was still put on Cipro becuase of a mild lung infection going on and...

Hey guys, I have having issues keeping wi my lean body mass on my arms and legs. Can this be and issue with CF? I do tube-feeds everynight. and I am about 137 pounds and 5,7. I go to clinic Friday and get PFT's done. hope they go well. P.S. I also have CFRD Thanks Sarah Bor

Hey my name is Sarah I am new here. I have CF and I was dx with I was 3. I am 20 now. I take a ton of meds and I have been getting high blood sugers. My last one was 289. I called the doctor and he wants me on pills for my sugers. I am always needing to eat becuase my sugers always get low. What...