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Hello all. I am ALL FOR this HCR reform because I think it will benefit more americans than not. However, right now, my son has Florida Medicaid insurance and part of me is wondering how this will be affected, if at all, by the potential HCR that is being discussed (if it passes to the final...

Since my son was in my womb he's been measuring small, there was a point he had gotten to the 21st %ile while i was pregnant, but since then he's been 10th %ile or below. He was maintaining the curve until the last couple of months and his GI and myself finally agreed to just get him a feeding...

Hello CF community, I've been out of the loop here for a while and I feel so disconnected from so many people in my life, overall, and I feel it helps me to an extent, but I really feel that I should get back in the loop, both here and in real life! So, anyway, my question is, WHAT do you all...

Not this past weekend but the weekend before, my family (my son, his father and I) went on a trip for a wedding and to visit my family in Orlando. Within a couple of days getting back, we all came down with a cold (cough, runny nose, etc) so I was concerned about the baby cuz hes got CF. The cf...

My son was diagnosed with CF through his newborn screening and after he had part of his bowel removed from a meconium ileus. He has been affected by the pancreatic deficiency and has been on enzymes and vitamins and zantac for his AR and we have been doing his nebulizer 2-3x a day for...

I got an email today from "Cf Living" speaking about pulmozyme... my son is on Xopenex for preventative as his lungs dont seem to be extremely affected by cf just yet, but I was wondering what the difference in the 2 medications is, if anyone knows. Thanks! *ps, ill also ask our pulmonologist...

so i ALWAYS see these commercials of the boogie-cartoons for mucinex and I was wondering if that stuff ever helped anyone w/cf get the mucus out of their lungs. Of course, my son is the one w/CF and only (almost) 5 months old, so I wouldn't give it to him, but I do know they make a kids...

Toby is 4 months old now and I'm about 99% sure he's teething. He'll eat at times, but never the full 5oz that he was a week ago. Now, he's only eaten a total of 7oz today and refuses to eat anymore! I don't know what to do. I've tried everything that a mother would do for a teething baby...

We have a Pari pro neb ultra II. It seems when we first got it, the .63ml ampule of Xopenex would take about 15 minutes to "burn" up, but now it is taking at LEAST 1/2 hour!! Sometimes, I will check the cup and the entire thing still seems to be in there, like nothing has gotten administered...

So,I've been going through all the processes of claiming SSI for DS, and they send me a form to fill out about his PAIN. My son is 4 months old, how do I know wht pain he is in, other than from his severe reflux? I didn't know PAIN was required for claiming SSI for a life threatening condition...

My son is 3-1/2 months old. He means the world to me. We were advised by doctors (both CF and his pediatrician) NOT to put him in day care. Because of that, I have not been able to go back to work. I am perfectly fine with being a SAHM, for the exception of the fiancial aspect of it. My sons...

I belong to a forum with other mommies, but most of which don't have CF. My son is 3-1/2 months old and it seems there are other babies his age that eat at least twice of what he eats! I am a little concerned and I of course have to increase the caloric content of his bottles, but he almost...

Alright, since my son is still little and he was my first introduction to CF, I am still learning a lot of stuff about it. However, what we have to do as far as his daily routine goes, I am just curious what other people go through and if there is anything comparable... basically, i was given...

Well my fiance said hes been feeling very weak with asore throat, i have also been feeling as i may have an oncoming cold. our son has cf, but i am worried we may get him sick! <img src="i/expressions/face-icon-small-sad.gif" border="0"> any suggestions to try and keep him healthy?

A friend of mine that has CF had said that her mother used cornstarch on her when she was younger... Johnson's makes a cornstarch powder... so I was wondering if that is okay to use with my son? He sweats a lot, so I figured it would help keep him a bit drier. I used a little on his diaper area...

When my son went to the cf clinic for the first time, he was only about 7lbs, so when they ordered the mask for his nebulizer, it was the "neonate" size, which is for "under 1 month". When I called the pharmacy for a refill of his xopenex, I asked if we can get the one size larger then that. It...

So after talking to a friend of mine online, and seeing people talking about IVF/PGD, I was wondering if anyone knows the approximate cost for one cycle of going through this process? I know some insurances are accepted with some of the clinics, but in the event that insurance isn't involved...

When we had an appointment last week for DS, they said that if he doesn't get up in the percentile of size, they may need to give him a feeding tube. He was 5lbs 4oz when he was born and last week was 8lbs 7oz at 9 weeks, so he's gained a pretty good amount of weight from birth- so because he...

Hello, My son was in the bottom 3% for weight the last doc visit we had. He has 2 appointments this week, so hopefully he's a little more!! He is 2 months old and on the 26th of June, weighed 7lbs 4oz and was 20.5". I am trying to fatten him up the best way that I can- adding a bit extra...

Hello all, my son was in the NICU for 4 weeks, and during his stay, he was diagnosed after about 10 days from his newborn screening with CF. The hospital has a social worker that helps families apply for SSI for the children. We went through the process and today I received a letter stating...