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  1. S

    Clarification

    <span>Hello: <span>I was denied yesterday because I don't have G551D but have CF and have been lucky to date with good lung function however that's been declining gradually. The clinic was as helpful doing all they could however the VP of prescription authorization or a like title has the last...
  2. S

    Clarification

    <span>Hello: <span>I was denied yesterday because I don't have G551D but have CF and have been lucky to date with good lung function however that's been declining gradually. The clinic was as helpful doing all they could however the VP of prescription authorization or a like title has the last...
  3. S

    Jerry Cahill is in for lungs for real this time!

    With all you have done you deserve the best of help and hope. Get well soooon the forum and community need you. Steve
  4. S

    Jerry Cahill is in for lungs for real this time!

    With all you have done you deserve the best of help and hope. Get well soooon the forum and community need you. Steve
  5. S

    Marjolein got her wings :(

    <P>How sad and crule this stuation is I hope that the path Marijolein is on now is one of comfort and full of breath. Breath easy, tears.</P> <P> </P> <P>Steve</P>
  6. S

    Marjolein got her wings :(

    <P>How sad and crule this stuation is I hope that the path Marijolein is on now is one of comfort and full of breath. Breath easy, tears.</P> <P></P> <P>Steve</P>
  7. S

    Marjolein got her wings :(

    <P><BR>How sad and crule this stuation is I hope that the path Marijolein is on now is one of comfort and full of breath. Breath easy, tears.</P> <P></P> <P>Steve</P>
  8. S

    Opening a can o' worms

    <P style="MARGIN: 0in 0in 10pt" class=MsoNormal><FONT size=3><FONT color=#000000><FONT face=Calibri>WOW:<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice<img src="i/expressions/face-icon-small-blush.gif"...
  9. S

    Opening a can o' worms

    <P style="MARGIN: 0in 0in 10pt" class=MsoNormal><FONT size=3><FONT color=#000000><FONT face=Calibri>WOW:<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice<img src="i/expressions/face-icon-small-blush.gif"...
  10. S

    Opening a can o' worms

    <P style="MARGIN: 0in 0in 10pt" class=MsoNormal><FONT size=3><FONT color=#000000><FONT face=Calibri>WOW:<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com<img src="i/expressions/face-icon-small-blush.gif" border="0">ffice<img src="i/expressions/face-icon-small-blush.gif"...
  11. S

    Opening a can o' worms

    Hello:<div><br></div><div>Is this the ADULT section of the forum? I have seen so many helpful posts in the brief four yeas of finding out how "I caught CF" and what it means to me. I now see posts of those w/o CF judging the users of the ADULTS section with the intent to find a place to stick...
  12. S

    Opening a can o' worms

    Hello:<br>Is this the ADULT section of the forum? I have seen so many helpful posts in the brief four yeas of finding out how "I caught CF" and what it means to me. I now see posts of those w/o CF judging the users of the ADULTS section with the intent to find a place to stick the LUCKY over 40...
  13. S

    Opening a can o' worms

    Hello:<br>Is this the ADULT section of the forum? I have seen so many helpful posts in the brief four yeas of finding out how "I caught CF" and what it means to me. I now see posts of those w/o CF judging the users of the ADULTS section with the intent to find a place to stick the LUCKY over 40...
  14. S

    Bactrim

    Hello:  <div><br></div><div>Not too bad however don't expect any sound sleep besides that not much else.</div><div><br></div><div>Steve</div>
  15. S

    Bactrim

    Hello: <br>Not too bad however don't expect any sound sleep besides that not much else.<br>Steve
  16. S

    Bactrim

    Hello: <br>Not too bad however don't expect any sound sleep besides that not much else.<br>Steve
  17. S

    Hyper Sal

    Hello: When I do the night nebs then go to bed lots of time I get the crackles / wheeze, and a quite weird slow release of air that was stuck somewhere while im inhaling. The whole routeen kinda freeks me out and forget about sleep with all that SH** going on. Inhaling OH NO I just gave it away...
  18. S

    Hyper Sal

    Hello: When I do the night nebs then go to bed lots of time I get the crackles / wheeze, and a quite weird slow release of air that was stuck somewhere while im inhaling. The whole routeen kinda freeks me out and forget about sleep with all that SH** going on. Inhaling OH NO I just gave it away...
  19. S

    Hyper Sal

    Hello: <br /> <br />When I do the night nebs then go to bed lots of time I get the crackles / wheeze, and a quite weird slow release of air that was stuck somewhere while im inhaling. The whole routeen kinda freeks me out and forget about sleep with all that SH** going on. Inhaling OH NO I just...
  20. S

    Anyone go to Penn, Johns Hopkins, Hershey or Hahnemann Hospital?

    Hello: I'm new 2008 (?) and old 54 so a late bloomer with the genes 508/117 however much is going on and go to Penn who seem do do a wonderful job with my care. The question I have is what are the differences that I can not see? One thing that did concern me was that I brought my own sputum...
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