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Our 4 year old daughter has cultured steno on and off beginning at the age of 14 months. She now almost always cultures it. Most of the time she exhibits no symptoms (cough etc.) when she cultures it. However, when it seems to be getting out of hand, or when she cultures steno in addition to...

Our 4 year old daughter has cultured steno on and off beginning at the age of 14 months. She now almost always cultures it. Most of the time she exhibits no symptoms (cough etc.) when she cultures it. However, when it seems to be getting out of hand, or when she cultures steno in addition to...

Our 4 year old daughter has cultured steno on and off beginning at the age of 14 months. She now almost always cultures it. Most of the time she exhibits no symptoms (cough etc.) when she cultures it. However, when it seems to be getting out of hand, or when she cultures steno in addition to...

Our 4 year old daughter has cultured steno on and off beginning at the age of 14 months. She now almost always cultures it. Most of the time she exhibits no symptoms (cough etc.) when she cultures it. However, when it seems to be getting out of hand, or when she cultures steno in addition to...

Our 4 year old daughter has cultured steno on and off beginning at the age of 14 months. She now almost always cultures it. Most of the time she exhibits no symptoms (cough etc.) when she cultures it. However, when it seems to be getting out of hand, or when she cultures steno in addition to...

What a day today has been. I haven't visited this forum in over a year. My daughter Sam (4 yrs. old) has done pretty well in the last year, only one round of IVs. Her lungs have actually been clear for months. But now she is sick again. I guess that's what prompted me to visit again. After...

What a day today has been. I haven't visited this forum in over a year. My daughter Sam (4 yrs. old) has done pretty well in the last year, only one round of IVs. Her lungs have actually been clear for months. But now she is sick again. I guess that's what prompted me to visit again. After...

What a day today has been. I haven't visited this forum in over a year. My daughter Sam (4 yrs. old) has done pretty well in the last year, only one round of IVs. Her lungs have actually been clear for months. But now she is sick again. I guess that's what prompted me to visit again. After...

Sorry, hit the wrong button! Anyway, since Sami has switched over to Pancreacarb 4 we have many, many bottles of unopened Creon 5's. If anyone is interested in having them, please let me know either here or email me at mdgoslin@comcast.net. Maria

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I was just about to log off and I saw your reply - that's funny about Sadia - the same thing happened to us. My oldest daughter Raquel was in for an outpatient surgery and Sadia was her nurse too. I was also surprised to see her there, but very grateful, she is so friendly. WE NEED TO GET...

Jenn, Here is a picture of the syringe we use that fits directly into the Mic-Key. Sami's Mic-Key size is a 14 Fr. 1.2 cm. Hope this helps. Don't get too discouraged, you will find something that works for you and things will get better. This feeding stuff is stressful, though, I know . ...

OK so I finally logged in so that I could attach these pictures. HAPPY HALLOWEEN! Maria (mom to Sami (2 1/2), Alexandra (5), and Raquel (7))