What a day today has been. I haven't visited this forum in over a year. My daughter Sam (4 yrs. old) has done pretty well in the last year, only one round of IVs. Her lungs have actually been clear for months. But now she is sick again. I guess that's what prompted me to visit again.
After seeing Emily's blog post about Colleen, I was so saddened. She was one of the first people I had contact with on this board years ago when Sam was first diagnosed. She always amazed me with her maturity and grace.
I opened this thread not realizing that it was old, and as I read through it, I realized that I had taken part in it. I remember this thread, I remember Colleen's quote from Rent, I remember her reply . . .
It's funny, I had actually had a good number of months where CF was not something I immediately thought of each day. Sam was healthy and growing. Things were going well. But CF always seems to find a way to rear its ugly head and bring me back to that initial terrible feeling. The feeling of fear for my daughter's future, the realization that this disease still takes away the lives of those who are so young. I'm so sorry, Colleen, you were an inspiration, you were too young -
Maria
