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hi, you can get the bracelets ( make sure you get the real ones) from ebay.com for 1.99 each

hi hayley thanks for replying, chloe will be emailing you soon, thanks again shes looking forward to chatting to you! nikki.

hi shamrock, yes she is going to have it done, we all think its for the best...she still backs out though, but it will get booked soon and she wont be able to change her mind! thanks for asking! niki.

hi, we live in england, my 9 year old daughter chloe has CF and really wants a penpal, she would prefer to write letters rather than emails but she can email you at first until you get to know each other.. shes having a port put in within the next 3 months and would like to talk to other young...

hi Anonymous! lol not meaning to scare you here but my daughter hasnt done much physio for ages and her chest is now out of shape because of it! its because she has air retention in her right side of her lung and physio helps her to breathe properly and get rid of it, but its getting worse...

dosnt matter now lol.

well i asked at the cf clinic if there are any other teqniques i can try and she just said no, this is the best for her, so i said what if i do pounding again, and she said rudly, yeh if you want her to go back to relying on you and she will never be independant, charming!!!!! so i dont know...

hi amber..ive sent you an email! we dont say piccs in england, they are just called long-short lines, or line, or just IV.. never heard of piccs.

thats quite confusing!, ive been told that men are sterile, but woman have no problem getting pregnant and that its been proven, the only thing is that a womans mucus near her cervix can be thicker making it harder for the sperm to penatrate, but other than that they have the same chance as non...

hi, my daughter aged 9 lost a lot of weight these last two weeks due to having a chest infection, she was skinny anyway but now its awful, all her bones are jutting out and she looks so frail...well she was at clinic on friday and the nurse said that if she dosnt put weight on soon she will have...

hi, me and my lot are in hull, england uk! any one else from england on here? x

hi carey, well my daughter is exctly the same, she must be the only child in the world who dosnt like chocolate and sweets! weve also tried everything...shes 9 now and is still just as bad and is struggling with her weight too, we try for months for het to put on like 2 pound! then one cough...

i know how to do pounding, but ive been told not to do it any more! the physio said she is very capable of doing AD, but thinking of it now, yeh she is too young! i wouldnt have liked to do that at my age either and if i did pounding i would be in control, i would just let her watch TV or...

hi, im not suprised you wont drink pregestimil, it used to make me sick making up my daughters bottles when she was younger! the smell is discusting! shes always been a really picky eater she still is and shes 9! the only thing my daughter would really eat when she was a baby is soft chocolate...

hi debbie, what are the vest or a pep-vaulve?, ive never heard of them! thanks.

hi mellisa, i will add you to my yahoo...i also have msn which i prefer (nursejuggs@hotmail.com) i would love to chat with you! thanks everyone for your advice, ive tryed all those treat tricks, we had a star chart, its works for a while but then she gets bored, shes quite spoilt anyway ( not...

my 9 year old daughter chloe has cf, no matter how hard i try i just cant get her to do her breathing excercises ( autogenic drainage) she hates doing it sooo much, ive tryed everything to get her to do them! its turning out to be a real problem because she has got a large lump forming in her...

hi, mum of chloe/cf aged 9....im not sure of her height just yet but its average and she weighs a measley 51 pounds! she hates scandi shakes!! ( dosnt mind fortijuice too much though)

hi, my 9 year old daughter "Chloe" has cf, shes not doing too well at the minute, she cant put weight on and her lungs are bad, shes on IV`s every 3 months, but latley its getting harder and harder to get a line in her arm, they tried 12 times last week and its really upseting us all. the nurse...

hi, my 9 year old daughter "Chloe" has cf, shes not doing too well at the minute, she cant put weight on and her lungs are bad, shes on IV`s every 3 months, but latley its getting harder and harder to get a line in her arm, they tried 12 times last week and its really upseting us all. the nurse...